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Dizzy still after my liver transplant

Transplants | Last Active: Aug 15, 2023 | Replies (65)

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@gaylea1

@rowdyramsey I suffered from HE episodes prior to transplant. My first (and worst) was when I was diagnosed with liver disease. I fell into a coma and life was touch and go for about 3 weeks. For 4-5 months i lost my memory and couldn't differentiate what day it was even month what it was. I forgot my address, telephone number and all other important information. Once wait listed my HE episodes lessened but I was taking lactulose and rifaxamin to counter act them. This eventually passed but I have dizzy spells now of and on. I received my liver Nov 28th 2018. I am just now able to remember things but the past 3 years are a complete blur. Be easy on yourself. Remember everyone heals differently and some people take longer than others.

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Replies to "@rowdyramsey I suffered from HE episodes prior to transplant. My first (and worst) was when I..."

I have instant and short term memory loss. I can’t continue thought in my brain because I forget. Instantly what I’m thinking about. I could be a word and I will forget what word I’m trying to say. I leave food burning in a stove about 20 days out of 30. My son will say I want a burger from Burger King. I know it and understand it fully. But what happens? I’m convinced he said mc.donalds. Happens daily! I forget mid sentence what I’m talking about. Not just forgetting what I wanted to say back , but I forget the entire subject..My body has not been right ever since transplant. It takes me 2 hours to get out of bed and get my thoughts together. I suffer servers intestinal pai for hrs. Every morning. I have zero energy. I mean none! Zapped the heck out. I can’t seem to eat anything at all. The day I had my transplant I weighed 420lbs. I now weigh 159. I can’t stop losing cause I have no appetite. I feel like every day is a struggle to get threw. Any idea what’s wrong with me? Yeah,I know<call a doctor. Well,I have. We will see if I get the help I need.

You seem to know what it was like. I had the same symptoms. Mine lasted every day for over 2 yrs. Lactlose was my breakfast,lunch and dinner! The reason I think there’s perm. brain damage is because the length and duration of my daily episodes