1. < Neuropathy

Supplement combination/effectiveness

Posted by wisfloj @wisfloj, Sep 27, 2019

Ergomax brand PEA was working so well after 9 weeks of 1200 mg. Per day, thought I was 'cured'. Pain and burning was rare and brief! Then...it comes back. Who would one go to in order to find out if supplements are cancelling each other, overkill in combination taken etc.? I take alpha lipoic acid in the R-ala form, acetyl L carnitine, turmeric and B12. Continuing with PEA since I stocked up! Medical doctors? doubt it, health food stores? Probably sell you more stuff! How do you find a chemist or biologist perhaps? Thanks for any advice.

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elizm | @elizm | Sep 27, 2019

@wisfloj
I, too, take PEA daily, and there are some weeks when I wonder if it's working... then it kicks back in (for whatever reason). I have read, btw, that acetyl L carnitine is not recommended for neuropathy, and I, personally, found that turmeric seems to initiate a rebound. Has your doctor tested for your B-12 level? Again, I personally do not recommend taking any vitamins unless a blood test shows a deficiency.

REPLY
2 replies
wisfloj | @wisfloj | Sep 27, 2019
In reply to @elizm "@wisfloj I, too, take PEA daily, and there are some weeks when I wonder if it's..." + (show)
@elizm

@wisfloj
I, too, take PEA daily, and there are some weeks when I wonder if it's working... then it kicks back in (for whatever reason). I have read, btw, that acetyl L carnitine is not recommended for neuropathy, and I, personally, found that turmeric seems to initiate a rebound. Has your doctor tested for your B-12 level? Again, I personally do not recommend taking any vitamins unless a blood test shows a deficiency.

Jump to this post

Hmmmm I read ALCAR was good for PN 🤔 when I ran out of it the pain came back and I thought that was the reason, so I started back up on it. I’ve been on turmeric for years. And yes I do need B12 -tested low and took too much and tested high, now I take less and tested mid-range. Well back to more research I guess. Thanks for encouraging me to stick with the PEA!

REPLY
1 reply
elizm | @elizm | Sep 27, 2019
In reply to @wisfloj "Hmmmm I read ALCAR was good for PN 🤔 when I ran out of it the..." + (show)
@wisfloj

Hmmmm I read ALCAR was good for PN 🤔 when I ran out of it the pain came back and I thought that was the reason, so I started back up on it. I’ve been on turmeric for years. And yes I do need B12 -tested low and took too much and tested high, now I take less and tested mid-range. Well back to more research I guess. Thanks for encouraging me to stick with the PEA!

Jump to this post

@wisfloj
See the Risks section at
https://www.webmd.com/vitamins-and-supplements/acetyl-l-carnitine-uses-risks#1
where it counsels that acetyl-l-carnitine is not recommended for those with neuropathy.

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 27, 2019
In reply to @elizm "@wisfloj See the Risks section at https://www.webmd.com/vitamins-and-supplements/acetyl-l-carnitine-uses-risks#1 where it counsels that acetyl-l-carnitine is not recommended for..." + (show)
@elizm

@wisfloj
See the Risks section at
https://www.webmd.com/vitamins-and-supplements/acetyl-l-carnitine-uses-risks#1
where it counsels that acetyl-l-carnitine is not recommended for those with neuropathy.

Jump to this post

Interesting, right? My Neurologist recommended acetyl L carnatine as well and I have alot of questions for him next week on supplement protocols.

REPLY
1 reply
wisfloj | @wisfloj | Sep 28, 2019
In reply to @rwinney "Interesting, right? My Neurologist recommended acetyl L carnatine as well and I have alot of questions..." + (show)
@rwinney

Interesting, right? My Neurologist recommended acetyl L carnatine as well and I have alot of questions for him next week on supplement protocols.

Jump to this post

Rwinney-please post any supplement information after your appointment. Not only is it the supplement, but then it is how much? What brand or type of formula? Etc. Like alpha lipoic acid-my research led me to only take the R component. PEA- is micronized really better or no real difference? And Like drug side effect commercials, “ may cause diarrhea or constipation, sleepiness or sleeplessness. Oh, what to do...

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1 reply
burningfeetinphoenix | @burningfeetinphoenix | Sep 28, 2019
In reply to @rwinney "By the way, your PEA info was helpful to me. I read the goal is to..." + (show)
@rwinney

By the way, your PEA info was helpful to me. I read the goal is to take oral and topical cream. Are you using both?

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@burningfeetinphoenix here...I am taking 1,200 mg PEA, 400 mg, 3 times/day. Also using PEA cream 2 percent, 3 times/day. I am much better! Very little burning. However, now that I can wear shoes again and hike. my calluses are splitting open,. These developed over years of running and hiking, and they burn. This I believe is common with SFN. I lost a large # of sweat glands in my feet. Sweat aids in healing. Using Castor Oil wraps for this...looking for new shoes. Mostly a problem on uneven terrain. Once this experiment is over I will try compounded Phentyloin 10 percent topical...studies look good on this being effective. Will keep you posted...hope PEA does not stop working for now...tied of spending time focusing on my feet...cannot get much else accomplished. Pam

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 28, 2019
In reply to @wisfloj "Rwinney-please post any supplement information after your appointment. Not only is it the supplement, but then..." + (show)
@wisfloj

Rwinney-please post any supplement information after your appointment. Not only is it the supplement, but then it is how much? What brand or type of formula? Etc. Like alpha lipoic acid-my research led me to only take the R component. PEA- is micronized really better or no real difference? And Like drug side effect commercials, “ may cause diarrhea or constipation, sleepiness or sleeplessness. Oh, what to do...

Jump to this post

Indeed I will. Believe me, I go to my appointments well prepared with a solid list of questions. Pretty sure my Drs dread seeing me on the schedule!

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 28, 2019
In reply to @burningfeetinphoenix "@burningfeetinphoenix here...I am taking 1,200 mg PEA, 400 mg, 3 times/day. Also using PEA cream 2..." + (show)
@burningfeetinphoenix

@burningfeetinphoenix here...I am taking 1,200 mg PEA, 400 mg, 3 times/day. Also using PEA cream 2 percent, 3 times/day. I am much better! Very little burning. However, now that I can wear shoes again and hike. my calluses are splitting open,. These developed over years of running and hiking, and they burn. This I believe is common with SFN. I lost a large # of sweat glands in my feet. Sweat aids in healing. Using Castor Oil wraps for this...looking for new shoes. Mostly a problem on uneven terrain. Once this experiment is over I will try compounded Phentyloin 10 percent topical...studies look good on this being effective. Will keep you posted...hope PEA does not stop working for now...tied of spending time focusing on my feet...cannot get much else accomplished. Pam

Jump to this post

Happy hiking! Glad to hear you're finding some relief. Thank you for posting your research and findings.

REPLY
wisfloj | @wisfloj | Sep 28, 2019
In reply to @rwinney "Indeed I will. Believe me, I go to my appointments well prepared with a solid list..." + (show)
@rwinney

Indeed I will. Believe me, I go to my appointments well prepared with a solid list of questions. Pretty sure my Drs dread seeing me on the schedule!

Jump to this post

Ha ha, you sound like me! We’re only asking them to do their job HELP us!

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 28, 2019
In reply to @wisfloj "Ha ha, you sound like me! We’re only asking them to do their job HELP us!" + (show)
@wisfloj

Ha ha, you sound like me! We’re only asking them to do their job HELP us!

Jump to this post

Exactly! I want my $40 co-pays worth.

FYI everyone...

I bought cold pressed hemp seed oil as part of my supplement protocol. I can't bring myself to swallow the advised 3 tbsp of oil so I ordered veggie hemp seed oil capsules instead.

Decided to rub the oil on my foot...my big toe and the joint area is constantly painful, flaming, swollen, turns purple and red. Can't be weight bearing at times, almost like it's broken, but it's not. This is part of what prohibits me from driving and walking.

Im finding the oil settles the area for a while. It's a start and makes good use of the product I invested in.

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