Ideas for pain relief from Small Fiber Neuropathy (SFN)

My diagnosis is peripheral neuropathy. I have numb feet and numbness on one leg up to the knee. But at the same time the feet are so sensitive that I can't wear socks, even though the compression socks might work. Reason is that one small wrinkle feels like I'm on a rock or nail, etc.
Hoping some cure can be found.

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@jager5210 You're welcome. I don't eat out very often myself, and always have a discussion with the staff. There are enzymes available now and I saw them at a CVS pharmacy that digest the gluten. I think people with gluten issues are deficient in the ability to produce this enzyme for digestion, so if you are eating out and are not sure, that is an option to reduce exposure. I had to give up nightshades for the most part, and I developed a reaction to tomatoes, but I found that I could tolerate them cooked in sauces if I don't do it too often. I can get joint pain in my fingers if I have too much. I also have asthma, and foods that trigger that are ones I avoid. I have been gluten free for 20 years and recently accidentaly ate a couple bites of Mac and cheese that wasn't gluten free and was real dairy. I thought it was the leftovers from my own gluten free/dairy free version. I did get pain in my stomach and intestines, but after a day, I was OK. My reaction to a mistake like that used to be worse like getting the stomach flu, and would also involve my asthma, and I think that because it had been years since my immune system was constantly fighting the gluten war, the soldiers were on leave. You can just start with basic foods without seasoning; plain meat and vegetables like your paleo diet. It gets tricky when you have to test individual ingredients and when labels don't tell you anything. That is true of a lot of seasonings and when a restaurant buys a large container of it, there isn't any guarantee, and they just don't know. That's why I avoid seasonings and spices unless I'm at home and know what is safe. I know for myself, any kind of pepper causes a problem. I've read that Bananas are related to ragweed, and I have breathing issues if I eat a tiny bite. Sometimes a person can tolerate a food if it is not eaten during the allergy season for a related plant. I can eat an egg yolk, but not the white and the only way to completely separate that well is hard boiling it first. I use the unsweetened coconut milk instead of dairy. I also treat my inhaled allergies for mold spores, grasses, ragweed, dust, etc. I do allergy shots. According to my functional medicine doctor, that reduces inflammation in the body for everything when you treat allergies that contribute to it. Just keep track of what is different about foods you ate if you don't feel well after. I give it a few tries to make sure I get the same results each time before I eliminate it altogether. Another suggestion may be digestive enzymes. I think as we age, we are less efficient at digestion, so adding some digestive enzymes may help. I have taken those before. The name of the game is really to try to reduce inflammation everywhere in your body as it is the root cause of a lot of disease. Eating foods that reduce inflammation helps a lot.

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Anyone using or know how to get Phenytoin (Brand name Dilantin) Cream? I read this study on it at link below. I have a link to the study but I cannot post links according to the rules...

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@burningfeetinphoenix I see that you wanted to share link to information to share with fellow members. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

Case Report - Topical Phenytoin Cream in Small Fiber Neuropathic Pain: Fast Onset of Perceptible Pain Relief by Jan M Keppel Hesselink and David J Kopsky (2017) https://www.scireslit.com/Pain/IJPR-ID13.pdf

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Thx! That is the study I was looking at...

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Hi @peggyn...I have posted on a couple of topicals. The one I was able to order was PEA Cream. I do not have it yet but did get the 100% pure PEA from a company in the Netherlands. I was available on Amazon. The PEA cream I ordered from Vitalitus LLC. It has not arrived yet. It's brand name is Soothamide - PEA 2% Topical Cream. I have not been able to find Phenytoin cream which has positive studies. BTW PEA is abbreviation for Palmitoylethanolamide. You can read about it in a brief study in the British Journal of Clinical Pharmacology. This study covers the PEA capsules, not the topical. I am working up to 1200 Mg/day. I cannot post link on this site but look up "Palmitoyethanolamide for the treatment of pain: pharmacokinetics safety and efficacy" Revised May 20019. The authors are from Sweden. This paper is based on 16 clinical trials. Onepaper on the topical PEA was pucblished by the HIH. Look up "Therapeutic utility of palmitoylethanolamide in the treatment of neuropathic pain associated with various pathological conditions: a case series" Published 2012. I'll be posting more on this in the future I am certain...Pam

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Anyone using or know how to get Phenytoin (Brand name Dilantin) Cream? I read this study on it at link below. I have a link to the study but I cannot post links according to the rules...

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