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I appreciate the update, @marvinjsturing.
From your post, you seem to be interested in information about possible donors. What sort of things would you like to know about possible donors, if you could have that information?
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I would like to know if I have a list of altruistic donors. Do I need to continue my plea for donors. Are they talking/scheduling someone for testing. Are they pro active in getting someone to come in. Do they move on immediately if they don’t get a response from a potential donor.
Can I ask them to put a specific donor that I know that has recently come forward to the top of the list for consideration.
Why can’t they let me know any of these questions without revealing specific details.
Who do I speak to from the recipient team that can shed any light on my quest. Is there a liaison between the two groups to find out what’s going on.
How many donors do I have in the list. Some I know, others could be strangers.
I understand that the donor team is an advocate for the donor. I would just like to know if they are working with someone and the status.
If someone says they can’t donate until next year, do they move on to the next person.
I am trying to have my transplant before I need to go on dialysis. I only have until the end of the year, I think. Next blood test is the end of the month.
@hopeful33250 Teresa, I really don't have have questions at this time. I have read a lot about the donor and recipient process. When I asked for donors, I had 2 people talk to me. Neither one qualified to donate. I learned this by talking to my donors not my transplant coordinator. I am not aware of anyone else who has contacted Mayo about being a donor. I have been told by my coordinator that if a living donor is approved by Mayo, Mayo will not tell me. Once a donor has been approved, the donor will be told that it is their responsibility to contact me and let me know. Then my donor, my transplant coordinator and I will work together to schedule the transplant.
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