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Feeling at my wits end with Chronic Pain and Fibromyalgia
Usually I am not one to share much of my personal story but here goes...I have what is called moderate to severe degenerative disc disease, arthritis of the spine C3-C7 and lumbar spine, and Fibromyalgia. In the 20 years Ive had pain, I"ve been though many treatments including PT, tens unit, bio feedback,injections, nerve ablations, you name it. I'm prescribed Cymbalta 60 mg for Fibro and anxiety as well as 225 mg of Lyrica. I have been on and off various painkillers too. I'm currently on a long acting oxycodone of 13.5 mg and once a day one 15 mg of IR oxycodone. This has been my regime for a few months now as I switched from 15 mg IR oxycodone. Now for those who are worried about me ODing...I understand. I actually hype-vigilant about my meds. (And I have my hubby and son who watch) Years ago I was on 15 mg Fentanyl patch for 10 months and came off it in one month with no side effects.
Right now I'm really struggling with this rotten pain. I have no appetite, either can't sleep or nap during the day.
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@parus So sorry you have been under the weather with this pain and missing your grandsons Christmas program is the worse I know how you feel. Blessings to you parus
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2 Reactions@parus Im glad to hear you are feeling better, but sad for you missing the little guy’s program
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2 Reactions@parus. Hey! It seems like everyone is off hibernating somewhere. I feel like I don’t know anyone now. A chance to meet some new “connections”. The holidays are rough for some of us, but I’m trying very hard to be positive by remembering the real meaning of the day. I’m so glad for this group-and even though I don’t write it a lot, I still remain connected every day. I wonder how you are today! ........Karen
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2 ReactionsGood morning to All! The holidays are difficult for me as well. Not only does the cold affect my pain symptoms but I miscarried a baby on Christmas Eve 17 years ago. That pain never goes away. I was only 12 weeks into the pregnancy so there was no determination of anything but for me it was still a great loss. We have 3 beautiful girls that I love with all my heart and wouldn't give up for anything, one of whom would not be here if it weren't for the miscarriage so I consider myself blessed. I had a great massage with a wonderful woman yesterday and feel like a whole new person! She was so gentle with me and tried a few different things to relax me and get my pain to lessen. Finding things to take care of ourselves and remembering that we need to take care of ourselves is one of the biggest things in dealing with pain. Remember that! We take care of everyone else in our lives but forget about ourselves.
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5 Reactions@karihammel My sympathy to you on your loss You never forget but your right it's important to take care of yourself it helps with the pain journey. I watched a beautiful Hallmark movie last night that. Was good but started to sink in that "why me" valley but did some exercise and feel better now . A massage sounds good
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3 ReactionsJen----I am having an awful time trying to find where I am right now---stupid, huh?? When I go off line I cannot find how to get back on--I just found this by accident! I go to google to find what I am to click on to get here. I type in mayo clinic connect and so much comes up, but nothing brings me here or other pages. What am I doing WRONG???? SOS!! I just got here by accident! Thanks ahead of time!
hi @trishj46, thank you for sending me an email using the contact form. I have replied to you by email offering some tips on how to navigate the website. To return to Mayo Clinic Connect, use the web address connect.mayoclinic.org.
On the homepage, you will see My Groups. These are the groups that you are following and the topics you're interested in.
You can also go to your profile to see where you have posted before. https://connect.mayoclinic.org/my-profile/
I hope this helps.
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4 Reactions@karen00 Hello once again. Yes, I have been MIA. All in all I am doing well with all of the ups and downs. I am presuming you did not lose your apartment. How are things going for you health wise? I have undergone a cervical rhizotomy which has provided some relief as long as I do not try and do too much. Holidays can be rough. I made up my mind to try and not delve into the past as there is no benefit in doing so. I try doing little acts of kindness and/or thoughtful things. I have discovered it can be contagious in a positive way and not like the hellacious intestinal bug that worked a number on me trying to snatch away my Christmas spirit. I am happy and relieved it has past and did not take my Christmas spirit as it left. I surely have cleansed intestines at this point in time.
Good to see you are still connected. 🙂
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2 Reactions@trishj46 He trish its Linda Lioness when you get back on connect I bookmarked it that helps me
@karihammel - It doesn’t matter how many years have passed since losing a baby- the pain never goes away. Like you, I’m grateful for our wonderful daughter born within a year of my loss at 26 weeks 40 years ago. I heard these children are called “rainbow children”. I have three great children- 2 of them have suffered with fibromyalgia since a young age.
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