Feeling at my wits end with Chronic Pain and Fibromyalgia

Posted by Jen, Alumna Mentor @sandytoes14, Aug 19, 2019

Usually I am not one to share much of my personal story but here goes...I have what is called moderate to severe degenerative disc disease, arthritis of the spine C3-C7 and lumbar spine, and Fibromyalgia. In the 20 years Ive had pain, I"ve been though many treatments including PT, tens unit, bio feedback,injections, nerve ablations, you name it. I'm prescribed Cymbalta 60 mg for Fibro and anxiety as well as 225 mg of Lyrica. I have been on and off various painkillers too. I'm currently on a long acting oxycodone of 13.5 mg and once a day one 15 mg of IR oxycodone. This has been my regime for a few months now as I switched from 15 mg IR oxycodone. Now for those who are worried about me ODing...I understand. I actually hype-vigilant about my meds. (And I have my hubby and son who watch) Years ago I was on 15 mg Fentanyl patch for 10 months and came off it in one month with no side effects.
Right now I'm really struggling with this rotten pain. I have no appetite, either can't sleep or nap during the day.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@trishj46

I am so confused -----last night I wanted to log on to post and I could find no way to get on site. I am not sure where I belong! I typed in Mayo clinic connect and I could find no site at all. It took me to some back page and I typed in search and they said no for chronic page, no for pusental neuralgia,no for neuropathy! They said I was not a registered member, I had not filled out profile and I did the day I joined Dec.4th----I could not log in anywhere. I finally found "help" and they took all this information and said they would get back to me.I am only on here now because I got mail from this site and it brought me here! Please explain what I am doing wrong?

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@trishj46, when you receive this email notification just click the View & Reply button at the bottom of the email and it will take you to the Feeling at my wits end with Chronic Pain and Fibromyalgia discussion in the Chronic Pain Group where you posted your question.

If you go to the top of the page and click the My Profile link by pointing to the down triangle to the right of your profile, it will show you your profile and you can scroll through all of the posts that you have made on Connect and find the Groups and Discussions you've posted in. That way you can go back and find discussions where you've posted.

When you click the View & Reply, look at the top right corner of the window to see if it shows that you are signed into Connect. It may be that you were logged out by the web browser program (Google Chrome or Internet Explorer) and then you can only view dicussions but not post any questions or responses until you login.

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I could not get into any page to log in or post-----There was no place except asking mev if I wanted to join or that I was not a registered member?? There is nothing in my profile, yet I gave that information. How do I get to this site?
I got web off of goggle but still did not take me to any site. I still do not understand! I do not have dementia,but feel
very stupid. What you are telling me did not work. How do I get on? Am I a registered member? It says no.
Things were worse as I was in such distress! I am still lost! Thanks.

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@trishj46

I could not get into any page to log in or post-----There was no place except asking mev if I wanted to join or that I was not a registered member?? There is nothing in my profile, yet I gave that information. How do I get to this site?
I got web off of goggle but still did not take me to any site. I still do not understand! I do not have dementia,but feel
very stupid. What you are telling me did not work. How do I get on? Am I a registered member? It says no.
Things were worse as I was in such distress! I am still lost! Thanks.

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@trishj46 I think you might be seeing the screen that just shows you are not logged into the Connect site. If you click one of the Login links it will take you to another screen where you can type your email address and your password for Connect. If you forgot your password, just click Forgot and it will help you reset your password by sending you a link to your email address.

If you are not able to login with your email address and password let us know and we should be able to help.

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John---I am sorry but it will not let me log in!

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I just found another page vthat says log out----when I pushed that automatically my e-mail and password were filled in-----but I still can't get anywhere! I am sorry to trouble you!

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@lioness

@summertime4 I'm sorry for your loss. My husband passed away in 2000 on 22 of this month. The first year is the worse with all the holidays but it will get better every year you,ll never forget but it will start to get more tolerable . A lot of meds interact with each other have you checked with your Dr. or pharmacist? I use a website Drugs .com everytime the Dr adds another med to see about interactions . One thing that helped me was exercise meditation and just music to listen to . How are you doing . Good luck with your surgery I will keep you in my prayers for the 8th. Hard to believer we are starting another decade .

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its 3am here and I could scream with excruciating pain everywhere---the pn nerve pain does not let up internally or externally. The spinal pain in every mucle & bone in my body. I cannot stay still but cannot walk around either----there is no med to help any thing--My feet are like cement
from neuropathy, since fx of hip I got more spinal damage and its going every where---I try listening to hynotic cd for chronic pain but no help now--so disgusted of 8 years of this I think I am going to lose my sanity. Where did this evil disease come from--me? What did I do? God forgive me.

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@trishj46

I just found another page vthat says log out----when I pushed that automatically my e-mail and password were filled in-----but I still can't get anywhere! I am sorry to trouble you!

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@trishj46 -- Sorry you are having trouble getting logged into the Connect site. I'm tagging our Connect Director @colleenyoung to see if there is an issue with the email address or password you are using.

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@trishj46

its 3am here and I could scream with excruciating pain everywhere---the pn nerve pain does not let up internally or externally. The spinal pain in every mucle & bone in my body. I cannot stay still but cannot walk around either----there is no med to help any thing--My feet are like cement
from neuropathy, since fx of hip I got more spinal damage and its going every where---I try listening to hynotic cd for chronic pain but no help now--so disgusted of 8 years of this I think I am going to lose my sanity. Where did this evil disease come from--me? What did I do? God forgive me.

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@trishj46 I'm so sorry for all your pain. What meds does the Dr. have you on? I have p.n,fibromyalgia and a lot of back problems Yesterday I walked to much and my left knee woke me up during the night . I went for the ice bag and this is anti inflammatory. Dr has me on tramadol 50 mg for pain and it really helps along with Meloxican for arthritis. But with a fibro flare nothing works . I hope the Dr can find something to give you relieve.

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@lioness

@trishj46 I'm so sorry for all your pain. What meds does the Dr. have you on? I have p.n,fibromyalgia and a lot of back problems Yesterday I walked to much and my left knee woke me up during the night . I went for the ice bag and this is anti inflammatory. Dr has me on tramadol 50 mg for pain and it really helps along with Meloxican for arthritis. But with a fibro flare nothing works . I hope the Dr can find something to give you relieve.

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Lioness-----I go crazy with pudental neuralgia! It never lets up any more. The flair is like being like on fire alive---The worst isv the most sensitive parts of my body. The spinalcord causes such neuropathy. Yes, I know vwhat you mean about your back. I can';t get relief any where.
I am on percocet 10mg 3-4 times a day, gabepentin 1800mg a day, soma, I don't feel anything is much help. I am so tired from being awake all night. I can't walk much or far with spinal and broken hip not healing well. My doctor tells me there are not many options left since I have tried everything. I hope you feel better? Thanks for caring! Hugs!

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@johnbishop

@trishj46 -- Sorry you are having trouble getting logged into the Connect site. I'm tagging our Connect Director @colleenyoung to see if there is an issue with the email address or password you are using.

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I am having problems logging in and I keep finding my emails in spam even though I have taken them out and put them in email. I think I might have to walk to the apple store see what they say.

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