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Feeling at my wits end with Chronic Pain and Fibromyalgia
Usually I am not one to share much of my personal story but here goes...I have what is called moderate to severe degenerative disc disease, arthritis of the spine C3-C7 and lumbar spine, and Fibromyalgia. In the 20 years Ive had pain, I"ve been though many treatments including PT, tens unit, bio feedback,injections, nerve ablations, you name it. I'm prescribed Cymbalta 60 mg for Fibro and anxiety as well as 225 mg of Lyrica. I have been on and off various painkillers too. I'm currently on a long acting oxycodone of 13.5 mg and once a day one 15 mg of IR oxycodone. This has been my regime for a few months now as I switched from 15 mg IR oxycodone. Now for those who are worried about me ODing...I understand. I actually hype-vigilant about my meds. (And I have my hubby and son who watch) Years ago I was on 15 mg Fentanyl patch for 10 months and came off it in one month with no side effects.
Right now I'm really struggling with this rotten pain. I have no appetite, either can't sleep or nap during the day.
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@trishj46, when you receive this email notification just click the View & Reply button at the bottom of the email and it will take you to the Feeling at my wits end with Chronic Pain and Fibromyalgia discussion in the Chronic Pain Group where you posted your question.
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1 ReactionI could not get into any page to log in or post-----There was no place except asking mev if I wanted to join or that I was not a registered member?? There is nothing in my profile, yet I gave that information. How do I get to this site?
I got web off of goggle but still did not take me to any site. I still do not understand! I do not have dementia,but feel
very stupid. What you are telling me did not work. How do I get on? Am I a registered member? It says no.
Things were worse as I was in such distress! I am still lost! Thanks.
@trishj46 I think you might be seeing the screen that just shows you are not logged into the Connect site. If you click one of the Login links it will take you to another screen where you can type your email address and your password for Connect. If you forgot your password, just click Forgot and it will help you reset your password by sending you a link to your email address.
If you are not able to login with your email address and password let us know and we should be able to help.
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3 ReactionsJohn---I am sorry but it will not let me log in!
I just found another page vthat says log out----when I pushed that automatically my e-mail and password were filled in-----but I still can't get anywhere! I am sorry to trouble you!
its 3am here and I could scream with excruciating pain everywhere---the pn nerve pain does not let up internally or externally. The spinal pain in every mucle & bone in my body. I cannot stay still but cannot walk around either----there is no med to help any thing--My feet are like cement
from neuropathy, since fx of hip I got more spinal damage and its going every where---I try listening to hynotic cd for chronic pain but no help now--so disgusted of 8 years of this I think I am going to lose my sanity. Where did this evil disease come from--me? What did I do? God forgive me.
@trishj46 -- Sorry you are having trouble getting logged into the Connect site. I'm tagging our Connect Director @colleenyoung to see if there is an issue with the email address or password you are using.
@trishj46 I'm so sorry for all your pain. What meds does the Dr. have you on? I have p.n,fibromyalgia and a lot of back problems Yesterday I walked to much and my left knee woke me up during the night . I went for the ice bag and this is anti inflammatory. Dr has me on tramadol 50 mg for pain and it really helps along with Meloxican for arthritis. But with a fibro flare nothing works . I hope the Dr can find something to give you relieve.
Lioness-----I go crazy with pudental neuralgia! It never lets up any more. The flair is like being like on fire alive---The worst isv the most sensitive parts of my body. The spinalcord causes such neuropathy. Yes, I know vwhat you mean about your back. I can';t get relief any where.
I am on percocet 10mg 3-4 times a day, gabepentin 1800mg a day, soma, I don't feel anything is much help. I am so tired from being awake all night. I can't walk much or far with spinal and broken hip not healing well. My doctor tells me there are not many options left since I have tried everything. I hope you feel better? Thanks for caring! Hugs!
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1 ReactionI am having problems logging in and I keep finding my emails in spam even though I have taken them out and put them in email. I think I might have to walk to the apple store see what they say.