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← Return to In shock after MAC diagnosis
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MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)
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Hi ,I am Karen Harrell and I went from doctor to doctor trying to find out why I could not breath and they all asked if I was a smoker ,which is no ,no drinking ,no smoking meth nothing .well at 44 I need a lung replacement of both,and if not I have 15months to live. Because of BOOP AND COP. I had this for 2 years and it scared my lungs to where they are hard. This has hit me so hard I could just cuss,but I'm not giving up. I want you to BELIEVE god has something for us. I don't feel my fight is over,I want to live and scared to death.
Replies to "Hi ,I am Karen Harrell and I went from doctor to doctor trying to find out..."
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Hi @kp5450121, I believe that you may have landed in the wrong group on Connect. The discussion in this group are focused on MAC & Bronchiectasis. You will find members talking about Bronchiolitis Obliterans with Organizing Pneumonia (BOOP) and Cryptogenic Organized Pneumonia (COP) in the Lung Health group here: https://connect.mayoclinic.org/group/lung-conditions/
Here are some specific discussions about COP and BOOP that I encourage you to read and take part in:
- Bronchiolitis Obliterans with Organizing Pneumonia (BOOP) https://connect.mayoclinic.org/discussion/boop-pneumonia/
- Cryptogenic Organized Pneumonia (COP) https://connect.mayoclinic.org/discussion/cop-1/
- Obliterative Bronchiolitis (OB) v. ILD or CLD??? https://connect.mayoclinic.org/discussion/obliterative-bronchiolitis/