@wendylsmith44, I see the room availability at Gabrielle House as a positive beginning. It is definitely something good to start off this journey.
Will you be Kenny's caregiver? Will you be in Jacksonville during the evaluation appointments? If so, I hope that you will be able to accompany him to his appointments. A 2nd set of ears is always best.. You will have opportunity to discuss your financial situation during those appointments.

Here is a link that I want to share - Creating a financial plan includes: Understand the costs, Insurance, Financial assistance.
https://transplantliving.org/financing-a-transplant/