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Cryptogenic Organizing Pneumonia (COP): Any success in treating?

Lung Health | Last Active: May 15, 2024 | Replies (19)
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@spudmato

My COP continues to be managed by the use of Prednisone. The result is a suppressed immune system allowing for various micro bacterium. I seem to manage with a ten mg dose. Any less results in a flair up in symptoms.
As a reaction other issues have developed in my lungs, nodules which can’t be ruled out as malignant.
They are likely reactive.
My quality of life has been impacted.
Monitoring is accomplished via blood work and chest scans and x rays.
Prednisone is no one’s friend.

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Replies to "My COP continues to be managed by the use of Prednisone. The result is a suppressed..."
albuqneece | @albuqneece | Mar 3, 2020

Hello. When were you diagnosed with COP. I too was put on Prednisone at 60 mg and now I've tapered it down to 0. Instead I have ben put on Bactrim low does antibiotic instead of the Prednisone. I feel MUCH better being off of Prednisone. There could be some correlation between COP and GERD and microscopic amounts of stomach acid could cause the COP. Also I medication called Tegratol, an anti-seizure that I was on for over ten years, could possibly cause COP also. I await test results from the Mayo clinic from my lung biopsies, How do you feel with COP...Do have any period of times where you are symptom free?

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