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Cryptogenic Organizing Pneumonia (COP): Any success in treating?

Lung Health | Last Active: May 15, 2024 | Replies (19)
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@albuqneece

Going to Jacksonville next week to meet with a Pulmonologist to see what's causing me to have this diagnosis. I've had it twice in the last two years and don't want to get it again. Anyone have problems with this diagnosis?

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Replies to "Going to Jacksonville next week to meet with a Pulmonologist to see what's causing me to..."
Colleen Young, Connect Director | @colleenyoung | Feb 23, 2020

Welcome to Mayo Clinic Connect, @albuqneece. You'll notice that I moved your message to an existing discussion about Cryptogenic Organizing Pneumonia (COP) so that you can connect with @spudmato @oakbourne @kp5450121 and others. You may also be interested in these discussions:
– Bronchiolitis Obliterans with Organizing Pneumonia (BOOP) https://connect.mayoclinic.org/discussion/boop-pneumonia/
– Obliterative Bronchiolitis (OB) v. ILD or CLD??? https://connect.mayoclinic.org/discussion/obliterative-bronchiolitis/

Albuqneece, I'll be interested in what you find out at your appointment with the pulmonologist. From what I understand COP is not an infection and the cause is unknown, which is frustrating. I read here on the American Lung Association's website that "A condition similar to COP may be occur as a side effect of certain medications." https://www.lung.org/lung-health-and-diseases/lung-disease-lookup/cryptogenic-organizing-pneumonia/symptoms-causes-risks.html
That might be something to ask the pulmonologist.

What treatments did you have the last 2 times you were diagnosed with COP?

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