1. < Lung Health

Anyone had Zephyr Valve Procedure at Mayo Clinic?

Posted by djallan @djallan, Jul 20, 2019

Is anyone willing to share their experience with Zephyr Valves at either Jacksonville or Scottsdale. I am stage 4 COPD and am very interested in this new procedure. Which Mayo has more experience? How many have they done at each location? What has been the improvement to quality of life? Is it worth doing?

Interested in more discussions like this? Go to the Lung Health Support Group.

fracturedd | @fracturedd | Jul 21, 2019

I had a couple placed in my left lung to help heal a pneumonthorax. It plugged my lung up! The valves were removed 3 weeks later once I healed. The procedure was fine, however,, I did have lung inflammation and pain after the valves were placed. The hospital I was at said they only have used the valves on 10 people in the us. This was 4 years ago. I have no pain today.

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carolannz | @carolannz | Jul 27, 2019

Fracturedd I had Zephyr Valves placed in June in Chicago. Only the bigger Hospitals are doing this and they have years of experience with all sorts of valves. It's painless and I had no problems at all. I can do things now that I couldn't do for a few years. I highly recommend the procedure to everyone.

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1 reply
fracturedd | @fracturedd | Jul 27, 2019
In reply to @carolannz "Fracturedd I had Zephyr Valves placed in June in Chicago. Only the bigger Hospitals are doing..." + (show)
@carolannz

Fracturedd I had Zephyr Valves placed in June in Chicago. Only the bigger Hospitals are doing this and they have years of experience with all sorts of valves. It's painless and I had no problems at all. I can do things now that I couldn't do for a few years. I highly recommend the procedure to everyone.

Jump to this post

I had it done at northwestern in Chicago!! Dr. Galespi!

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1 reply
danaj60 | @danaj60 | Feb 21, 2020

My 82 year old dad has severe COPD. Has anyone heard of this procedure (endoscopic lung volume reduction)?See this story about it from Mayo's In the LoopMayo Clinic Offers New Hope to Patients With COPD

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Ethan McConkey, Moderator | @ethanmcconkey | Feb 21, 2020

Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with a link to the In The Loop blog. I also moved your post to this existing discussion so that you connect with members like @djallan @carolannz and @fracuredd who live with obstructive pulmonary disease (COPD) and may have had endoscopic lung volume reduction, sometimes also referred to as Zephr valve (one manufacturer).

This procedure, which recently was approved by the Food and Drug Administration (FDA), treats patients experiencing disorders associated with chronic COPD, including advanced emphysema and chronic bronchitis. Only a few medical centers nationwide offer this treatment.

You may also appreciate this Mayo Clinic Radio segment on ELVR


Dana, is your father a candidate for this procedure? Is he already a patient at Mayo Clinic?

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2 replies
danaj60 | @danaj60 | Feb 21, 2020
In reply to @ethanmcconkey "Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with..." + (show)
@ethanmcconkey

Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with a link to the In The Loop blog. I also moved your post to this existing discussion so that you connect with members like @djallan @carolannz and @fracuredd who live with obstructive pulmonary disease (COPD) and may have had endoscopic lung volume reduction, sometimes also referred to as Zephr valve (one manufacturer).

This procedure, which recently was approved by the Food and Drug Administration (FDA), treats patients experiencing disorders associated with chronic COPD, including advanced emphysema and chronic bronchitis. Only a few medical centers nationwide offer this treatment.

You may also appreciate this Mayo Clinic Radio segment on ELVR


Dana, is your father a candidate for this procedure? Is he already a patient at Mayo Clinic?

Jump to this post

Thank you for linking and moving my question. I’m new at this. My dad is not currently a Mayo patient (I am though 😎). How do I know if he is a candidate for the procedure? Is there a checklist?

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1 reply
djallan | @djallan | Feb 21, 2020
In reply to @danaj60 "Thank you for linking and moving my question. I’m new at this. My dad is not..." + (show)
@danaj60

Thank you for linking and moving my question. I’m new at this. My dad is not currently a Mayo patient (I am though 😎). How do I know if he is a candidate for the procedure? Is there a checklist?

Jump to this post

Contact Dr. Bussy at Mayo Jacksonville or Dr. Swanson at Mayo Phoenix I have deal with both on valves and both are great.

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Merry, Alumni Mentor | @merpreb | Feb 22, 2020
In reply to @ethanmcconkey "Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with..." + (show)
@ethanmcconkey

Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with a link to the In The Loop blog. I also moved your post to this existing discussion so that you connect with members like @djallan @carolannz and @fracuredd who live with obstructive pulmonary disease (COPD) and may have had endoscopic lung volume reduction, sometimes also referred to as Zephr valve (one manufacturer).

This procedure, which recently was approved by the Food and Drug Administration (FDA), treats patients experiencing disorders associated with chronic COPD, including advanced emphysema and chronic bronchitis. Only a few medical centers nationwide offer this treatment.

You may also appreciate this Mayo Clinic Radio segment on ELVR


Dana, is your father a candidate for this procedure? Is he already a patient at Mayo Clinic?

Jump to this post

@ethanmcconkey- This is such a wonderful explanation of COPD. I think that I can also post this so that other people can appreciate the workings of a healthy and damaged lung. Thank you for posting this!

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eva3891 | @eva3891 | Jun 13, 2020
In reply to @fracturedd "I had it done at northwestern in Chicago!! Dr. Galespi!" + (show)
@fracturedd

I had it done at northwestern in Chicago!! Dr. Galespi!

Jump to this post

Were you able walk any distance and did you still take inhalers,oxygen,nebulizer after the valves

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