Connect
Does surgery work for Laryngopharyngeal Reflux (LPR)?
Since December 13, 2016. My symptoms started with a soar throat, soar inflamed taste buds on the tip of my tongue and inflamed salivary glands on my soft palate. My tongue, throat and soft palate had a painful burning sensation that was on and off. My General practitioner referred me to an Ear Nose throat specialist who referred me to an oral surgeon who referred me to an oral pathologist for burning mouth syndrome. After wasting 3 months of running around with these Dr's and being tested for oral thrush, hsv tests, vitamin deficiency tests, auto immune deficiency tests, cultural bacteria tests all which came back normal. I decided to go for a second opinion with another E.N.T. specialist who performed a camera scope and diagnosed me with acid in my throat. I was put on Dexilant and noticed the pain dissipate almost immediately only problem was I couldn't tolerate the medication. I was then put on Tecta and referred to a G. I. My general Practitioner did some blood work for h pylori and I tested positive. I started to develop tinitus in my left ear. I had a gastroscopy where they found a 2 cm Hiatel Hernial and my lower sphincter was weak. Thats when I was told I have a mild case of gerd, but I don't suffer from any heart burn. I was put on triple dose of antibiotics for h pylori and continued with the Tecta, domperadone and sucrolafate. I'm getting a little relief from the PPI and meds but I still suffer from bitter reflux taste and burning pain in my throat, soft Palate, the tip of my tongue and dry mouth that comes and goes. I'm in the process of having a 24 hr ph level test done. The G. I. I was seeing says my esophagus biopsy tested clean and he doesn't believe what is happening in my oral cavity is related to my gut. He stated in order for acid to travel to the throat it has to travel through the esophagus and the esophagus tested clean. Thus he can't help me anymore. I'm so confused my ENT says I have acid in my throat and the G.I. doesn't agree.
Like
Helpful
HugInterested in more discussions like this? Go to the Digestive Health Support Group.
Connect
Thank you so much for your suggestion. It is greatly appreciated! I’m so glad I joined this group. It’s nice to hear from people that are going through similar situations. Thank you again!
-
Like -
Helpful -
Hug
1 ReactionHi @michelle34, I am sorry you are having such a hard time getting help. You will see that I did move your inquiry over to the ongoing discussion about LPR. This not only groups like topics together and pushes the conversation to the top of the list, it also allows everyone in both conversations one common place to see all the comments and respond.
Michelle, what proton pump inhibitors have you tried so far?
@Michele34; I can sympathize with you. I went through that with Gelsolin and FKTN LGMD$. Don't know of only one is the cause, but I have several genes that relate to these two and impact the larynx . If you have had your genome sequenced, you or your doctor can go first to OMIM, and check out your symptoms, then check out which genes might be having an effect, then go to Human Phenotype Ontology at HPI.jax.app/browse/gene/xxxx (enter Gene number) to find out the major phenotypes. It will save you much worry, time, and money, and make your doctor a lot smarter.
I elevate the top of my bed with risers and that has helped tremendously with acid reflux (I’ve been diagnosed with GERD caused by a hiatal hernia). Bed risers can be bought at any store selling beds and bedding, like Bed Bath & Beyond, etc. I think I recently saw bed risers in a Dollar Tree too! They come in sets of four, but you only need to use two for the under the casters or legs of the head of your bed. It will need some getting used to because you will keep sliding down the bed, but it really helps with the reflux!
Thank you so much! I am so desperately looking to get help. I am suffering so bad every day. I am on the generic of nexium 40 mg 2 times a day. I have also tried the generic of Prilosec same dose and protonix. I have been on an alkaline diet for a few weeks and I just bought an adjustable bed so I am sleeping on an incline. Thank you
Thank you for responding! I’m not sure what some of the things are that you are talking about. What is Gelsolin, FKTN, and LGMD? Thank you
Also, another symptom I have that I have not heard anyone mention was an acidic taste in my mouth almost all of the time. Does anyone else suffer from that? Thank you
@michele34, This is the easy part. Gelsolin is also known as GSN, or AGEL, or Finnish Amyloidosis, a systemic cell disease, Autosomally Dominant. Progresses very slowly, but eats on the whole body. GSN attacks the netting around each cell. Then this allows various proteins, etc. to invade the cell. The GSN gene is number 2934, I believe. FKTN is Fukutin Limb Girdle Muscular Dystrophy. It may be the missing partner gene to GSN, as almost no one, if any, who have FKTN tests negative for GSN. LGMD is Limb Girdle Muscular Dystrophy. FKTN is one of these, and there are many.
I'm and 82 Y.O. male who was able to eat and drink most things during my life, but I did have a lot of stomach acid and I ate a lot of tums for years. Age has a funny way to sneak up and show your health problems you didn't know you had. About 114 days ago, 5 of my buddies and I were playing our weekly card game. Of course, we drank some beer during the game as usual. After the game, I ordered a pizza to take home. After eating just two fairly small pieces of Pizza I developed a severe stomachache. My wife drove me up to the local ER and after many tests determined I needed immediate surgery. My stomach had grown up thru a hole in my hiatel hernia into my upper chest cavity between my lungs and rib cage. The surgeon pulled the stomach back thru the hole back where it belongs and used part of the stomach to do a 360 degree wrap to close the hole in the hernia. The reason given by the surgeon for the 360d wrap, was so that I wouldn't have GERD after healing from the surgery. The surgeon went on to tell me that had the stomach burst, I probably would not have made it. (Nice news, right?) For 5 days following the surgery I was in considerable pain and couldn't eat or drink anything, so they went back in to cut the two Sucher's holding the wrap, but inflammation didn't allow them to get to the wrap, so they inserted a feeding tube into my stomach which I've had since. During the second surgery they determined the wrap had slipped down a little but there was nothing they could do about it because of the inflammation from the original surgery. As of today, I'm still taking Jevity 1.5 twice a day and just recently starting to experiment with soft foods and juices. The message here, is DO NOT wait to see a GI doctor if you are experiencing any issues with acid reflux. Had I done so, they could have corrected the hiatel hernia issue and I would probably be completely healed, which I am not yet. The surgeon said we will just have to have patience to see how it heals. My quality of life has changed for the worse because I was too stubborn to see a gastrologist. Suggest you take heed if you are experiencing any stomach issues.
-
Like -
Helpful -
Hug
2 Reactions