Does surgery work for Laryngopharyngeal Reflux (LPR)?
Since December 13, 2016. My symptoms started with a soar throat, soar inflamed taste buds on the tip of my tongue and inflamed salivary glands on my soft palate. My tongue, throat and soft palate had a painful burning sensation that was on and off. My General practitioner referred me to an Ear Nose throat specialist who referred me to an oral surgeon who referred me to an oral pathologist for burning mouth syndrome. After wasting 3 months of running around with these Dr's and being tested for oral thrush, hsv tests, vitamin deficiency tests, auto immune deficiency tests, cultural bacteria tests all which came back normal. I decided to go for a second opinion with another E.N.T. specialist who performed a camera scope and diagnosed me with acid in my throat. I was put on Dexilant and noticed the pain dissipate almost immediately only problem was I couldn't tolerate the medication. I was then put on Tecta and referred to a G. I. My general Practitioner did some blood work for h pylori and I tested positive. I started to develop tinitus in my left ear. I had a gastroscopy where they found a 2 cm Hiatel Hernial and my lower sphincter was weak. Thats when I was told I have a mild case of gerd, but I don't suffer from any heart burn. I was put on triple dose of antibiotics for h pylori and continued with the Tecta, domperadone and sucrolafate. I'm getting a little relief from the PPI and meds but I still suffer from bitter reflux taste and burning pain in my throat, soft Palate, the tip of my tongue and dry mouth that comes and goes. I'm in the process of having a 24 hr ph level test done. The G. I. I was seeing says my esophagus biopsy tested clean and he doesn't believe what is happening in my oral cavity is related to my gut. He stated in order for acid to travel to the throat it has to travel through the esophagus and the esophagus tested clean. Thus he can't help me anymore. I'm so confused my ENT says I have acid in my throat and the G.I. doesn't agree.
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Thanks, patrickl! I had always thought that alkaline water was a hoax, but I'll look into it again. I already sleep only on my right, and lately my left side. I've never slept on my stomach or back, although I've noticed that I sometimes wake up on my back if I was lucky enough to get some REM sleep. At this age, most men wake up 3 times a night.I"m going to try and elevate my mattress several inches and see if that works for me too. Thanks again for replying to my post.
Sorry to hear about your illness. First thing is don’t take any aspirin or ibuprofen unless your Dr. says to. These caused me to have a bleeding ulcer. I was in the hospital for 3days and had my small intestine cauterized. They told me I had silent reflux and the Barrett’s esophagus. So I guess it was a good thing that I found out early about these conditions. So no I’m on a low acid diet. No fried food, no Mexican food, no Italian food, no tomatoes, no booze, soda, chocolate, mint, no regular coffee, only low acid coffee like health wise brand, ph is 6.18
I’m eating baked chicken, turkey, baked fish and fresh steamed broccoli, cauliflower, baked potatoes, spinach. Try these and see how you feel.
Don’t eat anything 3hrs before bed. Drink lots of water. I also walk 5-7 miles a day. Good luck! Steve
I also have GERD that has been going on for over a year if not longer and getting worse instead of better. I had endoscopy done, results said inflammation of esophagus and stomach. I went to a different Gastro Dr. He did a test called EGD Bravo, they put a capsule the size of an eraser on a pencil in my esophagus and I wore a monitor for 48 hours. They do it like a endoscopy. I just did 2 more tests. A esophageal manometry, then a stomach emptying test.
I go July 16th for my results. So far the first test did show I had a higher acid level but not as high as most people. I told him I probably wasn't off the protonix long enough to show a more negative result. I told him I did try to go off of GERD prescription med because I also don't want the side effects, and that I was in a lot of pain being off of the med. The Manometry test , looks at how your esophagus is working. I feel that may be my problem, because I feel full after I eat something, like its just sitting on my stomach and not moving down the tract like it should.
My husband has the gastric disease Gastroparesis. He has had it for a long time and has trouble eating. I would try some protein drink or mix to supplement your diet. I use a tasteless Collagen powder in my drink, food for protein. I also bought the book "The Acid Watcher Diet" off of Ebay. for more information.
I also follow a Digestive Health group on Facebook for up to date Info and articles on Digestive Issues.
Thanks, Rifleman64, I know that I can't continue to take my ibuprofen.Not sure what I can take for my arthritis pain. Tylenol isn't much help. What's strange is that I don't usually eat anything spicy or fried. I've been on the same diet for years, which includes whole grain bread with seeds 6gm protein 4 gm fiber, low fat, part skim mozzarella sticks with 7g protein and only 1.5 sat fat, almonds or walnuts daily, Siggies non fat yogurt with 15gm protein, peanut butter, and for desert, raisin bread, or instant flavored oatmeal. I don't eat red meat, but occasionally eat chicken breast without the skin. I have an Ensure Plus also daily and eat a protein bar every day too. It's made from Sunflower butter and egg whites and has 20gm protein. Oh, yeah, a glass of orange juice, which is now impossible to drink. So I've been eating only the foods that don't bother me and still experimenting with new food ideas. I"m also trying to finish eating 3 hours before bed, but I've been eating most of my food all the way up to the time I go to sleep and it's never caused me problems before. I went out last night and bought some bananas and some red bell peppers and a few red potato's. I don't drink alcohol, but I do miss my espresso. I've never warmed up to vegetable, but I had been getting enough fiber from the grains I eat and had been drinking v8 every night, but that's out now because of the tomato content. I'll have to go buy some chicken breast, but I'm not much of a cook!
I"m sorry you're going through all that! Is that one of those little camera's that you swallow with the monitor? That would seem like the easiest way for them to have a direct up close look inside your esophagus. I've decided to switch to Nexium because I've heard a lot of anecdotal evidence that it works much better than the omeprazole. Good luck with your test results! It must be very frustrating for you.
Thanks, pamelajean! I"m sorry to hear your husband has gastroparesis. It must be difficult to live with. I"ll look in to the book "The Acid Wathcher's diet". I hope your husbands finds some relief.
My doctor scheduled me for an abdominal ultra sound next Monday morning.
Are PPIs helping with the symptoms?