← Return to Treatment for NHL: Rituximab & Bendamustine

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@njnana

Yes that is the type of lymphoma I have ---- I was in touch with you in March and April (if I recall dates correctly). The stem cell transplant would be the next step for most of us with this type. I am relieved to hear that your son is feeling fine right now. If time allows (and depending on the limits of his insurance), I would highly recommend getting a 2nd & 3rd opinion on whether the time is now right for the transplant. There are quite a few patients on the American Cancer Society support site that have shared their experiences with the transplant. The most important thing is to keep all germs away from your son so he can recover as quickly as possible. Best of luck to him, you and your family. You are all in my prayers!

And yes, we have a very rare form of lymphoma. Your son falls into the average age and gender of this lymphoma. The more of us that share our experience with Nodular lymphocyte-predominant Hodgkin lymphoma, the more we will help others who have this type. Being diagnosed at the age of 52 and a female through off the lymphoma teams at 3 teaching institutions with whom I met.....very uncertain what to do with me.

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Replies to "Yes that is the type of lymphoma I have ---- I was in touch with you..."

Yes that’s right - we did touch base in the spring. Thanks for your reply. I’ll post on how our son is doing. He will be staying with us - we’re calling our place his rehab. Center - and will I’m sure drive him crazy with protocols to avoid infections. From what I’m gathering - video games will be his means of staying sane during this time. I’ve offered to teach him to knit - not interested. 🙂
Hope you continue to do well - it’s good to hear from other folks with this same rare version of Hodgkins.