1. < Brain & Nervous System

wife has balance problem

Posted by randypixie @randypixie, Jun 14, 2019

I am trying to find help for my wife. The balance symptoms started 2 yrs ago and she uses a walker now. We have seen a neurologist in our home town of Amarillo Tx. And Scott and White in Dallas. I think she has had great Dr's , who have done many test for every diagnosis that could be related to her symptoms , the testing has been extensive and duplicated over the past 2 yrs., but no diagnosis was achieved. I am trying to find a doctor, or a group, who, when everything has been ruled out, can look at the other possibilities, obscure diagnoses, or general treatments for undiagnosed diseases or symptoms. We are at a loss of where to turn. Any advice you give will be greatly appreciated, Thanks, Randy & Pixie

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randypixie | @randypixie | Jun 18, 2019
In reply to @hopeful33250 "@randypixie @jakedduck1 Yes, an otolaryngologist is a good idea. I recently saw a neuro-otolaryngologist (specially trained..." + (show)
@hopeful33250

@randypixie @jakedduck1
Yes, an otolaryngologist is a good idea. I recently saw a neuro-otolaryngologist (specially trained in dizziness, balance problems, etc.) Mayo would be a good place to go, I'm sure.

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Thanks Teresa, your thoughts are encouraging me to continue. good luck with your pursuits too.

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randypixie | @randypixie | Jun 18, 2019
In reply to @johnbishop "@randypixie – I am fortunate that my primary is in one of the local Mayo Family..." + (show)
@johnbishop

@randypixie – I am fortunate that my primary is in one of the local Mayo Family Health Clinics in a small town close to the Rochester Mayo Clinic Campus. I have had multiple experiences where my primary care doctor has referred me to a specialist at Rochester Mayo Clinic, What I have experienced is how well the different specialties work together to come up with a diagnosis by being patient centered.

I know it must be frustrating not having a diagnosis. If it is an option for you, I think Mayo Clinic Rochester would be an excellent choice. If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Have you discussed the possibility of getting a referral from your wife's doctors?

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John thanks for your reply, and the link, I want to continue looking for information and answers, So Rochester here I come.. And thanks for your encouragement and empathy . Randy & Pixie

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randypixie | @randypixie | Jun 18, 2019
In reply to @doncampbell "Hi Randy, was most interested in wife's problem with balance. I have difficulty with balance reflected..." + (show)
@doncampbell

Hi Randy, was most interested in wife's problem with balance. I have difficulty with balance reflected in my walking. Let me try t describee my recent history. Some 4 years ago I had prostate cancer
. This was successfully fixed with radiotherapy and hormone treatment. This was no picnic but I gradually recovered walking ok. Then I fell a couple of times but recovered from that but had difficulty striding out., and could not confidently go up and down stairs My doctors told me I must exercise.. This has got progressively worse. Only my pride stops me from the zimmer .my doc had me tested for Parkinson which proved negative. However, I had a brain scan and this reveals that the blood supply to that part of my brain is restricted. This, my consultant, says is the cause of my balance problem. He says the only thing that might help is to take aspirin but this has its own dangers. That is where I am now. Your problem is so similar to mine I had to share with you.I have omitted many details in cutting to the chase. Please get in touch if I can be of some help. I would appreciate any info you come across

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Don. thanks for your reply and story. couple of questions- How are you doing now, did the aspirin help? The term "brain scan" are you referring to an MRI?, Do you plan on continuing to see more DR's and what kind of consultant did you have. I enjoy details if you have anything else you would like to share.
I have decided to go to Mayo in Rochester . It's hard to keep spirits up . But thanks to you and good people @ Connect, feeling better and not alone. Yes, lets keep in touch. Randy, Pixie

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1 reply
Moderator
Lisa Lucier, Moderator | @lisalucier | Jun 28, 2019
In reply to @randypixie "Don. thanks for your reply and story. couple of questions- How are you doing now, did..." + (show)
@randypixie

Don. thanks for your reply and story. couple of questions- How are you doing now, did the aspirin help? The term "brain scan" are you referring to an MRI?, Do you plan on continuing to see more DR's and what kind of consultant did you have. I enjoy details if you have anything else you would like to share.
I have decided to go to Mayo in Rochester . It's hard to keep spirits up . But thanks to you and good people @ Connect, feeling better and not alone. Yes, lets keep in touch. Randy, Pixie

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Hi, @randypixie - Hoping that @doncampbell will return and share more about how he is doing now, if the aspirin was helpful, whether he had an MRI or other scan, and whether he is planning to continue to see more doctors.

@randypixie - also wanted to check in and see how your wife is doing with the balance problems you'd mentioned? When will you be visiting Mayo Clinic's campus in Rochester, Minnesota?

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randypixie | @randypixie | Jul 2, 2019

hi Lisa, thanks for your concern., I have contacted Mayo and started a file. we were waiting for a w/c to arrive before the trip.it arrived today so I hope to make appointment with Mayo tomorrow. Wife has had a bad day and seems to be deuterating. I was hoping physical therapy would help, but isn't.
We will keep looking, but not so hopeful today. wife doesn't want to go to Mayo, I think that's why she has had such a sharp downturn....

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3 replies
johnhans | @johnhans | Jul 2, 2019
In reply to @randypixie "hi Lisa, thanks for your concern., I have contacted Mayo and started a file. we were..." + (show)
@randypixie

hi Lisa, thanks for your concern., I have contacted Mayo and started a file. we were waiting for a w/c to arrive before the trip.it arrived today so I hope to make appointment with Mayo tomorrow. Wife has had a bad day and seems to be deuterating. I was hoping physical therapy would help, but isn't.
We will keep looking, but not so hopeful today. wife doesn't want to go to Mayo, I think that's why she has had such a sharp downturn....

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I am sorry your wife is not doing as well. Has she stated why she doe not want to go? Maybe you could help to come up with a way to overcome the objections she has. Hopefully she will feel more inclined to go in a few days and that she will be doing better.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 3, 2019
In reply to @randypixie "hi Lisa, thanks for your concern., I have contacted Mayo and started a file. we were..." + (show)
@randypixie

hi Lisa, thanks for your concern., I have contacted Mayo and started a file. we were waiting for a w/c to arrive before the trip.it arrived today so I hope to make appointment with Mayo tomorrow. Wife has had a bad day and seems to be deuterating. I was hoping physical therapy would help, but isn't.
We will keep looking, but not so hopeful today. wife doesn't want to go to Mayo, I think that's why she has had such a sharp downturn....

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@randypixie

I'm sorry to hear that your wife was not helped by the physical therapy and that she is feeling more discouraged. It is so wonderful that you are advocating on her behalf and trying to get the best treatment for her.

Will you keep posting and let us know how you are doing?

In that light, we also have a Caregivers' Discussion group. In these discussions, you will find some support for yourself as you try to help your wife. Here is the link to that group, https://connect.mayoclinic.org/group/caregivers/

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1 reply
randypixie | @randypixie | Jul 3, 2019
In reply to @hopeful33250 "@randypixie I'm sorry to hear that your wife was not helped by the physical therapy and..." + (show)
@hopeful33250

@randypixie

I'm sorry to hear that your wife was not helped by the physical therapy and that she is feeling more discouraged. It is so wonderful that you are advocating on her behalf and trying to get the best treatment for her.

Will you keep posting and let us know how you are doing?

In that light, we also have a Caregivers' Discussion group. In these discussions, you will find some support for yourself as you try to help your wife. Here is the link to that group, https://connect.mayoclinic.org/group/caregivers/

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Teresa, thanks for the link to caregivers group, I was thinking that I could benefit from talking to others about it , and will check it out.

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randypixie | @randypixie | Jul 3, 2019
In reply to @johnhans "I am sorry your wife is not doing as well. Has she stated why she doe..." + (show)
@johnhans

I am sorry your wife is not doing as well. Has she stated why she doe not want to go? Maybe you could help to come up with a way to overcome the objections she has. Hopefully she will feel more inclined to go in a few days and that she will be doing better.

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@johnhans, yes, we will make it, she also has IBD. I think she worries as much about that as well. thanks for your support

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1 reply
johnhans | @johnhans | Jul 3, 2019
In reply to @randypixie "@johnhans, yes, we will make it, she also has IBD. I think she worries as much..." + (show)
@randypixie

@johnhans, yes, we will make it, she also has IBD. I think she worries as much about that as well. thanks for your support

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Thank you for your reply. My father had IBD for many years. It is no fun I can tell you. Sorry she has all these problems.

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