Bowel or fecal incontinence and how to manage it

Posted by Sarah @emyliander, Jun 11, 2019

I am 73 yr old femal with diagnosed Celiac, Microscopic Colitis and IBS. i don’t have diarrhea, BM’s are either soft formed or constipated small hard stool, but either way I can be incontenant of small amount of stool. I wear a pad in close knit underwear with legs, so nothing can escape. Any advice from people with same problem would be comforting and useful. I would like to know how you handled it on social occasions.
Thank you, Emyliander

Interested in more discussions like this? Go to the Digestive Health Support Group.

I am sure it is the over production of bile. But yes all sweetness ending in tol give me a belly ache and diahrea. Many people have that reaction. It is also used in preps for colonoscopy.

REPLY
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @tjitske, I admire how proactive you have been. You said, " I had to do my own research and come up with the diagnosis." For many of us, this has been the way we have learned about a difficult and/or hard to diagnose problem. In addition, you have worked to find out what foods and products will set off the loose stools. Undoubtedly, being a retired nurse has given you some insight and investigative skills.

You mentioned that you had your gallbladder out 40 years ago. Did this problem start at that time?

Jump to this post

No it started 10 years ago. But got worse. It was awefull. Now with the RX I can manage it. And yes I feel disappointed that no one caught it sooner. I had lots of tests and all were negative. So I had seen this forum and from there ichecked, googled read about others, then a aquantance told me about her issues and what her doc told her and bingo. My gastro gave me the RX and with the first dose I had relief. Imagine that

REPLY
Profile picture for JK @contentandwell

@emyliander I understand completely about not talking to your friends about these problems, they can be embarrassing. I don't talk to many people about it either, and even my son and daughter do not know I have fecal incontinence, they do know about my urinary incontinence. They had to so they would understand when we are out why I have to stop so frequently.
Ahhh, so you are basically right next door, in Maine! We have a small, rustic lakeside cabin on Lake Thompson. We used to be there every summer weekend and for vacation but it's getting to be a lot to do for my husband and myself so we are trying to disposition it to our kids right now but that's not an easy thing to do. Lots of complications.
JK

Jump to this post

Hi Jackie, this is @emyliander, I have been referred finally by my GP for Pelvic PT, that was a week ago and I haven’t heard from them so on Monday I will call my GP and get their # . In the meantime I get emails from Harvard Health Medical and I just received an invitation to purchase an e-book on urinary and fecal incontinence, with up to date info on treatments and meds to help this problem. The cost is $18.00. I’m wondering if anyone else has purchased this and if you think it’s a reputable deal. Thanks for any info you can give me. Emy.

REPLY
Profile picture for Sarah @emyliander

Hi Jackie, this is @emyliander, I have been referred finally by my GP for Pelvic PT, that was a week ago and I haven’t heard from them so on Monday I will call my GP and get their # . In the meantime I get emails from Harvard Health Medical and I just received an invitation to purchase an e-book on urinary and fecal incontinence, with up to date info on treatments and meds to help this problem. The cost is $18.00. I’m wondering if anyone else has purchased this and if you think it’s a reputable deal. Thanks for any info you can give me. Emy.

Jump to this post

Emy, have you had a specific diagnosis of what is causing this problem? I ask because in my case, a GI told me I was incontinent (because of ongoing diarrhea) and sent me for Pelvic Floor therapy. A colorectal surgeon said therapy could help me control the urges somewhat problem but weak Pelvic Floor muscles were not causing the diarrhea. Turns out I have IBS.
I think if were you I would wait to order the book until after starting the therapy and finding out more about what is causing your problem. Good luck!

REPLY
Profile picture for jackiem95 @jackiem95

Emy, have you had a specific diagnosis of what is causing this problem? I ask because in my case, a GI told me I was incontinent (because of ongoing diarrhea) and sent me for Pelvic Floor therapy. A colorectal surgeon said therapy could help me control the urges somewhat problem but weak Pelvic Floor muscles were not causing the diarrhea. Turns out I have IBS.
I think if were you I would wait to order the book until after starting the therapy and finding out more about what is causing your problem. Good luck!

Jump to this post

In reply to jackiem95. I have been diagnosed with Celiac, IBS, and Microscopic Colitis, in that order, with a few yrs in between. I’ve had the diagnosis for many yrs, but the incontinence only for a couple of yrs. so I know why the diarrhea and constipation happpen, and I’ve been told that my rectal muscles are weak. But no one ever suggested anything I could do about it until I joined the digestive discussion. I’ve noticed that those who have had the PFPT say it has helped “somewhat “ so what are the odds of having it take care of the problem entirely. Would that be expecting too much, especially at me age ? My blood work shows that the Celiac is well under control, I’m strict with my diet. As for the other two diagnoses there’s not a simple answer.
Thank you for replying, I know everyone is different, so there’s no guarantee.
Emy.

REPLY

Hi everyone. I was having incontinence and was given Imipramine to take at night. It has solved the problem of having accidents in public but not the dumping and general constipation. I have been diagnosed with Celiac since 2008 and IBS since 2013. I was afraid to go out due to the accidents and now I can at least hold it till I get to a bathroom. Still, going to the bathroom in public stalls is not fun. I believe it is from (for me)the 5 days of constipation (or more) then my body's desire to rid itself of all the toxins inside it. My celiac panels are also very good, so I not I am not eating badly that way. I researched the foods that cause gas and bloating soooo I don't know what else to do. Stop eating?
Reny

REPLY

what do you guys think pf the Keto diet? Would that be too hard on a thyroid patient? I also have Hypothyroid (along with everything else).

REPLY
Profile picture for Sarah @emyliander

Hi Jackie, this is @emyliander, I have been referred finally by my GP for Pelvic PT, that was a week ago and I haven’t heard from them so on Monday I will call my GP and get their # . In the meantime I get emails from Harvard Health Medical and I just received an invitation to purchase an e-book on urinary and fecal incontinence, with up to date info on treatments and meds to help this problem. The cost is $18.00. I’m wondering if anyone else has purchased this and if you think it’s a reputable deal. Thanks for any info you can give me. Emy.

Jump to this post

@emyliander Around here, when you are referred to someone like a physical therapist, it is up to you, the patient, to call and make the appointment.
I had pelvic floor PT and did find it helpful. I also get emails from Harvard Health and I think I saw the one you mention. I have not purchased it. They do have a lot of good titles and they probably are helpful. Harvard is definitely reputable.
JK

REPLY

@jackiem95. Hi this is Emy, I wrote a note yesterday but don’t know what happened to it. Just to say I had my first evaluation for Pelvic Floor PT. I will continue with treatment after I return from Spain. I am taking Iron pills as my count was down, and am using that about every other day to keep my stool solid, it seems to be a happy medium. So I am doing well but still take precautions. I have had to increase my antidepressant and anti anxiety meds as all of this, and my vacation coming up was overwhelming.
Thanks , Emy.

REPLY
Profile picture for Sarah @emyliander

@jackiem95. Hi this is Emy, I wrote a note yesterday but don’t know what happened to it. Just to say I had my first evaluation for Pelvic Floor PT. I will continue with treatment after I return from Spain. I am taking Iron pills as my count was down, and am using that about every other day to keep my stool solid, it seems to be a happy medium. So I am doing well but still take precautions. I have had to increase my antidepressant and anti anxiety meds as all of this, and my vacation coming up was overwhelming.
Thanks , Emy.

Jump to this post

Safe travels and good luck with health!

REPLY
Please sign in or register to post a reply.