@suri Anytime we receive an unsettling diagnosis, there is disbelief, grief, anger, plus a myriad of other emotions. I remember 1988 when I received my lupus diagnosis, later in 2008 when diagnosed with melanoma, and later yet in March 2015 when diagnosed with a rare kidney disorder, how sharply clear my senses were on the drive home. The colors were bright, focus sharp, it was as if my whole being was on alert. Perhaps that is similar to how you are feeling? [By the time my fibro dx came, i just shrugged my shoulders and said, "what else"] Remember medicine is not an exact science, and what one professional may follow is not the same for the next. Likewise, the treatment protocol a patient [us!] decides on can vary widely. Keep researching, keep asking questions, don't be quiet until you're satisfied. We're here for you and will tell our experiences. We care.
Ginger