Best department to get help for Chemo-related Neuropathy?

@jesfactsmon Hi Hank, Add PEA to the list of everything I have tried. Tried maximum doses of it for three months, and gave up. Did nothing for me at all. But maybe it will help Linda!!!! Everyone is so different. Many people do get pain relief from being on it, and there is really good research about it. Good luck Hank!!! You are one good husband!!! Lori Renee

@lorirenee1 Well, I try. Reading everyone here is a good way to keep me humble though. I have to say, I have been so inspired by all of you people. The only heros in my life before Connect were my dad, my mom, my wife, and Winston Churchill. Oh, and Lincoln and Washington.

Now I have about a dozen more heroes, at least. You are one. Phew, all of you make me tear up, all of the time. I feel so honored!

Hank

Hi Sunny, I have used 4% patches and then tried Uber Numb which is a 5% lidocaine cream purchased on Amazon which is easier to apply. It is relatively inexpensive and a little goes a long way.

@sunnyflower @jesfactsmon
Hi, Sunnyflower. Are you using these patches for peripheral neuropathy, as well as for a lower back issue, like sciatica? Your situation is unclear to me.

My experience with lidocaine cream was for my chemo port, immediately prior to an infusion. Because I became allergic to most adhesives (with the exception of the paper tape) during chemo, I had to come up with a work around to use it. Consequently, I wouldn't be able to use the patches in any event.

Nonetheless, if I used lidocaine cream for my CIPN, I would need to smear it all over my feet, legs, arms and hands at various intervals during the day, risking some well-known adverse effects in that quantity. Good to hear that you are finding relief from it, however.

Hello elizm, yes, I am using the patches for both neuropathy and muscle pain on my back. The liquid 4% that I apply with a Q-tip on to my knees, is definitely for neuropathy, I do have bone on bone in my left knee and arthritis in both. My left knee is significantly more swollen, per my orthopedic doctor, but the burn and sting I believe is neuropathy. I do not know why I feel it so intensely on my knees compared to the rest of the body where I feel it, that is the unrelenting burn, sting, and like I'm missing the top protective layer of skin even, but I find the things that works the best are my, ice gels that I keep in the freezer. I'm sure I'm getting my knees too cold and leaving the cold on too long but it is the only thing that really, truly works the desk.

I am very sorry to hear that you had to go through chemo and hope that you are doing well now. Or at least tolerable. And, that you are in remission. I apologize because I have gotten so far behind on all of the posts that I haven't had time to read any of yours yet besides this one.

I wish you the comfort and peace of God through Christ which transcends all human understanding (Philippians 4:7). That is the only thing that gets me through . Many blessings, Sunny flower 😊

Hello Helennicola, I am surprised that Amazon sells a 5% lidocaine product because I thought 5% was by prescription only. I wonder about the authenticity of this product. But as long as you are getting relief, that is a good thing.

My 5% prescription Lidocaine patches which, by the way, are extremely expensive, used to work so well but now, not as much so. Don't know why.

I am running way behind on the messages on connect so need to get caught up but don't know if I will be able to 4 days and then, there will be that many more new post so I may have to just start new and a fresh.

I wish you all the best take good care, Sunny flower. 😊

FPN Webinar: Chemo-Induced Peripheral Neuropathy: Quality of Life & Treatment Planning for Breast Cancer & Other Cancer Patients

The Foundation for Peripheral Neuropathy is bringing together a panel of experts for this webinar to discuss CIPN and its impact on patients and their physical and mental health.

Date: November 10, 2020
Time: 12:00 PM – 1:00 PM ET (Please note that this lecture starts at 11 a.m. Central, 10 a.m. Mountain and 9 a.m. Pacific)
Register here: https://register.gotowebinar.com/register/5174813403335669772?blm_aid=116106

FPN Webinar: Chemo-Induced Peripheral Neuropathy: Quality of Life & Treatment Planning for Breast Cancer & Other Cancer Patients

The Foundation for Peripheral Neuropathy is bringing together a panel of experts for this webinar to discuss CIPN and its impact on patients and their physical and mental health.

Date: November 10, 2020
Time: 12:00 PM – 1:00 PM ET (Please note that this lecture starts at 11 a.m. Central, 10 a.m. Mountain and 9 a.m. Pacific)
Register here: https://register.gotowebinar.com/register/5174813403335669772?blm_aid=116106

Hi, the webinar about chemo induced peripheral neuropathy was given by the Foundation for Peripheral Neuropathy yesterday. We were not able to attend the online presentation in real time but today they sent out a link to the recording of it. We just watched most of it. We were personally most interested in the first speaker, less so the following two. If anyone is interested in viewing it, here is the link we were sent. I am not sure whether the recording is accessible by everyone but you're welcome to try it out if you're interested.
https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/
Best, Hank