Has anyone tried Scrambler Therapy for neuropathy or for pain?

Posted by wisfloj @wisfloj, May 23, 2019

I have read about this device and I’m hoping someone can attest to its effectiveness for idiopathic neuropathy. I've read success stories and information online. Apparently insurance does not cover treatments, to the tune of $250 for the customary recommended 10 consecutive weekdays.

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Hi there, it's Lori Renee. I suffered so badly from foot neuropathy that I finally tried Scrambler Therapy. I had throbbing, stabbing, contorted, burning, balls of feet and toes. I could barely wear shoes, yet barefoot was very bad also. After trying acupuncture, P.T., cold laser at home, gapapentin, duloxetine, I finally tried Scrambler Therapy. I just finished my tenth treatment, and was afraid to stop. My pain has become much more manageable. Some horrid symptoms in my toes finally disappeared. It is a gift to not feel like my toes are being yanked out of their sockets, or twisted. It is a gift that all throbbing has stopped. I still have stiffness in the balls of my feet, which did not respond to treatment. I still have positional burning sometimes. It seems when I just sit, with my feet on the ground, I have occasional burning. But all in all, my feet are much improved. I feel that although imperfect, I can live this way. I feel that my life has been given back to me. I pray that the Calmare/Scrambler improvements last. I finished my last treatment yesterday. It has made a significant difference. I pray it continues. I am lucky to have a Scrambler Clinic close to my house. It is the only one in Illinois, where I live. Called Spero Clinic, and it works!!!!

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@lorirenee1

Hi there, it's Lori Renee. I suffered so badly from foot neuropathy that I finally tried Scrambler Therapy. I had throbbing, stabbing, contorted, burning, balls of feet and toes. I could barely wear shoes, yet barefoot was very bad also. After trying acupuncture, P.T., cold laser at home, gapapentin, duloxetine, I finally tried Scrambler Therapy. I just finished my tenth treatment, and was afraid to stop. My pain has become much more manageable. Some horrid symptoms in my toes finally disappeared. It is a gift to not feel like my toes are being yanked out of their sockets, or twisted. It is a gift that all throbbing has stopped. I still have stiffness in the balls of my feet, which did not respond to treatment. I still have positional burning sometimes. It seems when I just sit, with my feet on the ground, I have occasional burning. But all in all, my feet are much improved. I feel that although imperfect, I can live this way. I feel that my life has been given back to me. I pray that the Calmare/Scrambler improvements last. I finished my last treatment yesterday. It has made a significant difference. I pray it continues. I am lucky to have a Scrambler Clinic close to my house. It is the only one in Illinois, where I live. Called Spero Clinic, and it works!!!!

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Hi @lorirenee1 - you may have noticed I moved your post to this existing discussion in which you've participated before on scrambler therapy so that your update can be shared with others who have similar interest in this treatment.

Simply click VIEW & REPLY in your email notification to get to your post.

Glad you've had so much improvement in your neuropathy symptoms.

Now that you've come this far, does your doctor have something in mind to keep you address the stiffness and positional burning? Also, will you share more about what this therapy is like -- what is done, how it feels, any recovery aspects, how soon you felt effects?

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@lisalucier

Hi @lorirenee1 - you may have noticed I moved your post to this existing discussion in which you've participated before on scrambler therapy so that your update can be shared with others who have similar interest in this treatment.

Simply click VIEW & REPLY in your email notification to get to your post.

Glad you've had so much improvement in your neuropathy symptoms.

Now that you've come this far, does your doctor have something in mind to keep you address the stiffness and positional burning? Also, will you share more about what this therapy is like -- what is done, how it feels, any recovery aspects, how soon you felt effects?

Jump to this post

Hi, It's Lori Renee again. A bit more about Calmare/ Scrambler Therapy. I had 10 treatments, for 45 minutes each treatment. Electrodes were attached to my feet and charged till they reached as far as I could tolerate without feeling pain. I felt vibrations, tiny stings here and there. Nothing painful at all. Each session, electrode placement might be changed a bit. After about the third session, pain decreased considerably and I had relaxed toes for the first time in a year. I could wiggle them, and that was a hoot!!!! The horrid sensations in my toes ended, and that created most of the pain. I still have very stiff ball of feet, but they do not throb anymore. They used to cause excruciating pain. The man who did the treatments had no answers for the symptoms that are left. I still use CBD salve on the balls of my feet, march in place so my feet stop burning. Like I said, Calmare is not perfect, but SO much better. I even got a bouquet of flowers after my treatment was over. I pray that my improvements. last. I may have to have booster treatments, but was told the pain never comes back as severe as it started. I went to Spero Pain Clinic in Riverwoods, Illinois. The owner of the clinic also does the treatments, and has had years of experience administering the treatment. He treats any kind of nerve related pain. God Bless him.

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@lorirenee1

Hi, It's Lori Renee again. A bit more about Calmare/ Scrambler Therapy. I had 10 treatments, for 45 minutes each treatment. Electrodes were attached to my feet and charged till they reached as far as I could tolerate without feeling pain. I felt vibrations, tiny stings here and there. Nothing painful at all. Each session, electrode placement might be changed a bit. After about the third session, pain decreased considerably and I had relaxed toes for the first time in a year. I could wiggle them, and that was a hoot!!!! The horrid sensations in my toes ended, and that created most of the pain. I still have very stiff ball of feet, but they do not throb anymore. They used to cause excruciating pain. The man who did the treatments had no answers for the symptoms that are left. I still use CBD salve on the balls of my feet, march in place so my feet stop burning. Like I said, Calmare is not perfect, but SO much better. I even got a bouquet of flowers after my treatment was over. I pray that my improvements. last. I may have to have booster treatments, but was told the pain never comes back as severe as it started. I went to Spero Pain Clinic in Riverwoods, Illinois. The owner of the clinic also does the treatments, and has had years of experience administering the treatment. He treats any kind of nerve related pain. God Bless him.

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Thank you for sharing your experience. How nice that it worked so well for you, congratulations!

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I just thought that perhaps it would help someone else to use it! Yes, my feet are much more tolerable now! Lori Renee

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@johnbishop

@wisfloj and @lorirenee1 -- Here is a patient story for the Calmare scrambler device that may be helpful.

Breaking Away From Pain With the Help of ‘The Scrambler’
https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

I'm tagging the following members who have discussed scrambler therapy in a post. @sadfeet @elizm @cwallen9 @cbcbasket @swiss @janetdh @nodunk are you able to share your experience or use of the scrambler therapy?

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This sounds like something I did 3 yrs ago only it was called interferential therapy. I went to a physical therapist 2-3 xs per week for about 3 months. It worked so well that I purchased a machine for home use. It actually turned out to be a little bigger than my palm. It was $400 but very worth it. In the first year of treatment, my feet improved 50-60%. This past winter I did another new treatment called an aqua roll. It’s a new treatment for neuropathy. I also had laser treatments. My neuropathy is on the balls and toes of both feet. These treatments improved my feet another 25 %. I wanted to continue with the treatments but my insurance wouldn’t approve any more.

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@banksnc49

This sounds like something I did 3 yrs ago only it was called interferential therapy. I went to a physical therapist 2-3 xs per week for about 3 months. It worked so well that I purchased a machine for home use. It actually turned out to be a little bigger than my palm. It was $400 but very worth it. In the first year of treatment, my feet improved 50-60%. This past winter I did another new treatment called an aqua roll. It’s a new treatment for neuropathy. I also had laser treatments. My neuropathy is on the balls and toes of both feet. These treatments improved my feet another 25 %. I wanted to continue with the treatments but my insurance wouldn’t approve any more.

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My neuropathy is also on my toes and balls of feet. I have never heard of interferential or aqua roll therapies. Can you tell me something about them? The Scrambler machine is not for home use. It costs at least six figures! Also, it is not covered by insurance, and the treatment was about 2500.00. I was in such agony that I had to do it. I am still not out of the woods, but can cope better, because the pain is way less. However, the balls of my feet continue to be a problem, because they are very stiff. I also still have very bad sensations in many shoes. But all in all, I am way better. Best of luck to you. Neuropathy is horrid. Lori

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Has anybody tried "Calmare Therapy"- suppose to be similiar to "spinal cord stimulator" but less invasive, some Physical Therapists offer this therapy, I'm very curious about this therapy, there is a PT in Buford Georgia who offers this therapy, I'm so glad I found this group! 👱‍♀️Thank you,

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@lweave2

Has anybody tried "Calmare Therapy"- suppose to be similiar to "spinal cord stimulator" but less invasive, some Physical Therapists offer this therapy, I'm very curious about this therapy, there is a PT in Buford Georgia who offers this therapy, I'm so glad I found this group! 👱‍♀️Thank you,

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Hello @lweave2, You will notice that we merged your discussion with an existing discussion with the same name so that you can meet other members discussing the Calmare scrambler device. Here is a patient story for the Calmare scrambler device that may be helpful.

Sidelined No More – Scrambler Therapy Puts Tess Wilson Back in Action:
- https://sharing.mayoclinic.org/2015/10/19/sidelined-no-more-scrambler-therapy-puts-tess-wilson-back-in-action/

@lorirenee1 and others may be able share their experience with you. Can you let us know if you try the scrambler therapy and it helps you?

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@lweave2

Has anybody tried "Calmare Therapy"- suppose to be similiar to "spinal cord stimulator" but less invasive, some Physical Therapists offer this therapy, I'm very curious about this therapy, there is a PT in Buford Georgia who offers this therapy, I'm so glad I found this group! 👱‍♀️Thank you,

Jump to this post

@lweave2
Hi, my wife was going to try it, or at least was thinking about it until we found out there was no facility near us that owned a unit and was offering the service. When I was reading about it initially (5-6 years back) the units cost over $100,000 and there were several in use at various facilities. But the problem was the treatment takes 2 weeks so you have to travel and stay at a hotel for over 2 weeks, plus the treatment cost was at least $5000. The kicker was when you find out that you may (or probably) would need to go back for a booster treatment after 2 or 3 months. And this is for a treatment that might or might not work. The whole idea just had too many drawbacks, unless you lived near a unit. Hank

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