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The going is slow. My doctor ordered a C-PAC machine which I am going to try for the first time tonight (just got it.) If that does not work, I plan to see a Neurologist. Hopefully someone will figure out what is causing these terrible symptoms! Thank you so much for asking! 😀
Gary
Replies to "The going is slow. My doctor ordered a C-PAC machine which I am going to try..."
@gary1864 You've had your C-PAP for a while now, how is it going? Are the symptoms you were having improving? Are you still on tacrolimus? I know it is the best for liver transplants but I was changed to sirolimus because tacrolimus was causing my creatinine to be high and that of course was a problem. I doubt they would have changed it for a lesser problem.
I hope you are feeling better now and things are settling down more for you. I know how discouraging it is to feel unwell for an extended period of time.
JK
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@gary1864 - Gary, I hope that the slow going will result on positive changes for you. (Think of the Little Engine That Could) I trust that the liver is still happy, since you didn't mention it. It is my understanding by listening to friends and family members that getting used to a CPAP can take some practice and patience.
I want to share this discussion where you can meet others and talk with them about their CPAP experiences.
Groups > Sleep Health > Cpap and sleep
— https://connect.mayoclinic.org/discussion/cpap-and-sleep/
Keep in touch, Gary. Let me know if I can be of any help.