Post Transplant Symptoms
It has been 3 1/3 years since my liver transplant. I am going to describe the symptoms that I have every waking moment of every day. It feels like the morning after you have been up all night without any sleep. A heavy, leaden feeling. My doctors don’t listen to me.
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Mayo would not put me on the active list at UNOS until my insurance approved to pay for my transplant
Here is some more information about transplant costs from the UNOS Transplant Living site.
https://transplantliving.org/financing-a-transplant/
@twocatmama, this might give you some ideas about costs as well as support/resources that are available.
I'm so lucky I live in Canada. Everything was paid for while in hospital including surgery, room, medications and doctors. My husband's insurance plan at work (minimal monthly payments) covers 80% of my medications and the government covers the rest. It was relatively no cost for us.
Thank you. We’ll certainly need fir our insurance to step up.
@estrada53 Unfortunately I believe you are correct. Transplants are hugely expensive and hospitals do need to get paid. It doesn't seem fair but that is how it is from what I have heard. I think they don't just check your insurance, but if your insurance is not adequate I believe they also check your assets to see if you have the ability to pay. Not only is the transplant expensive but the immunosuppressants afterward are very costly too.
JK
@twocatmama I had quite a time to convince the company that approved all procedures for my insurance company - yes, there are more than one company involved in all of this - that I did not need a lung and heart transplant, but only a heart transplant. Because my heart failure was due to sarcoidosis, which mainly affects the lungs in nearly everyone, this "approver/counselor" thought I would need new lungs as well. That was definitely not the case. My husband had to call and ask to speak with a supervisor and request another "counselor" for me. I was in tears because of her difficult attitude as she was not approving the transplant to be covered. And we had great insurance. So, this doesn't mean that the same thing will happen to you; however, do not be reluctant to push the envelope with your insurer. This is a life we're talking about and we have all paid our dues/premiums for so long. I wish you speedy success.
A little bit of learning is a dangerous thing! I am so glad it worked out for you.
Thank you!
@luckonetj, I want to invite you to share about your special nurse in the discussion, Best nurse EVER! https://connect.mayoclinic.org/discussion/best-nurse-ever/
@gary1864, How are you doing? Did you get to see the new doctors? I hope that you have found some answers and are beginning to feel better. Rosemary