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Post Transplant Symptoms

Transplants | Last Active: Apr 23, 2022 | Replies (109)

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@rosemarya

@dcbrenek, That is fantastic! Please share what happened after you drove back ? Did you get the transplant right away? Did you have a caregiver??? Did you have a place to stay? I cannot begin to imagine how I could have driven anywhere after I got my call. I needed my husband to just guide me to the shuttle at the front entrance of the Gift of Life House!

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Replies to "@dcbrenek, That is fantastic! Please share what happened after you drove back ? Did you get..."

@rosemarya: Well, after arriving back in Dallas with a MELD 35, I was at the top of the regional list for transplant. I stayed there for 6 days while receiving treatment to get my lab numbers under control.. Then, on day 7, a liver became available and my second chance at life came true. I'm sorry I left the impression that I myself drove back and forth and back. My brother-in-law took me and brought me back. He was tired of course after driving 9 hours, so my backup ride took me back about 6 PM that same day, thank heavens. No, I was barely coherent myself being so ill and riding in a car for what turned out to be 13-1/2 hours. Encephalopathy kicked in upon arrival back. All I remember was hearing a doctor call my name and not being able to answer - like a bad nightmare. After transplant, I stayed at Twice Blessed House (a place for our of town patient's to stay on the campus of Baylor Medical Center). My caregiver was my Mom, bless her heart. She spent 5 out of 6 weeks with me in Dallas with a 1 week break when my sister and brother-in-law took over. So, my story i guess is a little different in that "the call" came before a liver was available for me. That's my story. Looking back, I wonder how we made it through everything we had to go through. But for the grace of God I guess...Thanks for asking!