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Welcome to Connect, @dcbrenek I too had a liver transplant, in September 2016. Thankfully mine was uneventful. I had not heard of cryptogenic cirrhosis before so I googled it. The symptoms are pretty much the same as they were with my cirrhosis which was from NASH. The immunosuppressants can be a challenge, having to be so careful of not being exposed to germs, etc. I generally fly with a mask on now, and restaurant buffets are out of the question. I did catch Legionnaire's disease but that is pretty minor compared to what you are dealing with.
It sounds as if the EBV really caused a lot of problems. It must have been a bit scary when they had to cut back on the immunosuppressants and your liver was almost rejected, but it sounds as if those problems are history now, and I hope they will stay that was -- as history.
I hope the symptoms you are experiencing now will be over shortly, but as you commented, they are not as bad as what you went through prior to transplant. You mention not being in a big city, so did you have to travel far for your transplant? I live in southern NH and there is not any hospital in the state that does liver transplants. Thankfully Boston is only about 55 miles away so I went to Mass General there and they were fabulous.
JK
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Hi @contentandwell and thank you for the welcome! I had to travel about 250 miles (about a 4-1/2 hour drive) for my transplant. I live in West Texas (about in the middle of Texas) and went to Dallas at Baylor Scott & White. They were nothing but nice and professional, although I did kind of throw them a curveball with my recent EBV illness. An interesting aside, when I was ready for transplant, I made the 4-1/2 hour drive to attend Clinic in December 2017. My lab results were not read until later in the day, but I was dismissed from clinic. After making the drive back, I barely re-entered the house when I received "the call." I was told I was sicker on the blood labs than I appeared in person, so I had to make the drive back to Dallas that same day. I knew I wasn't feeling that good - my MELD score had jumped to 35 (putting me at the top of the list in my region). Anyway, thanks for letting me ramble and thank you again for the support!