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Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease
Caregivers | Last Active: Jul 5 4:04pm | Replies (120)Comment receiving replies
MY THREE CHILDREN HELP ALOT AND THINK I SHOULD CONSIDER A NURSING HOME BUT WE HAVE BEEN MARRIED 66 YRS AND I CANT IMAGINE LIFE WITHOUT HIM HERE
Replies to "MY THREE CHILDREN HELP ALOT AND THINK I SHOULD CONSIDER A NURSING HOME BUT WE HAVE..."
@allegro
Your husband definitely qualifies for HOSPICE @ HOME.
I do not know how manage every thing as a caregiver. It must be very difficult. My thoughts and prayers are for you, the brave lady and your husband, who is suffering from ALS. It will not be too long. All that has a beginning, also has an end.
My 81 yr old.husband is my only caregiver and at least you have your children to support you to some extent.Count your blessings dear and Hang in there. Things will get better for you soon.
VJ
@allegro That is such a devastating and difficult disease. I think a nursing home would be the only way it could be managed. You could spend as much time there with him as you can. His care will get very difficult to impossible for you to manage at home. I am so sorry for what you are going through
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@allegro I am so sorry for what you and your husband are going through. I really know nothing about ALS but it sounds devastating. Along with the help of your children, you probably could get a visiting nurse or someone to come in, as @lioness suggested. That might help a bit. There are Medicare benefits for services like that. I am sure it would be extremely difficult to put a loved in a nursing home.
Thoughts and prayers are with you.
JK