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Mayo Appointments: Brain Tumor 48-hour Access Program

Posted by rosannen @rosannen, Apr 19, 2019

I know I read something about the Mayo Clinic having a 48 hour appointment window for people who have brain tumors. Can anyone give me more info on that?

I know someone who is seeing a neurologist at the Mayo and they will not refer her to a Neurosurgeon even though she was diagnosed with a Meningioma. They told her to follow up in a year but she wants to hear more about it since she really wasn’t given any info when she was there.

I’ve had a completely different experience than she has. I’m not sure why she is being denied a visit with a Neurosurgeon when she was told by a neurologist at the Mayo that she has a Meningioma. When I made an appointment at Mayo I was given an appointment for Neuro oncologist and a Neurosurgeon without any issue at all. In fact, they told me these are the people I need to see with this type of tumor.

Any suggestions for her or help would be appreciated.

Thanks.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 9, 2020
In reply to @twinklez15 "My name is Candace Jansen I'm currently residing in South Africa with my mother and 3..." + (show)
@twinklez15

My name is Candace Jansen I'm currently residing in South Africa with my mother and 3 daughters. I am a single and at this present moment things are not going well. The reason why I say so is my family and myself just found out that my daughter Ashlynn has cancer on her spine as well as on her brain!
My daughters eyesight has also been affected!! For me as a parent to see my little girl suffer like this is heartbreaking because I feel helpless and powerless.

I would like it so much if my daughter could get treatment at you facility! I'm not working at the moment so it be costly for me to get there.. Please help me!!!

Kind regards
Candace Jansen

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Hi @twinklez15 Candace,
I'm so sorry to hear about your daughter. Children should not have to suffer. I know you would exchange places with her in a heartbeat if you could.

You can find out more information about possibly seeking care at Mayo Clinic by going to this website
International Patient Services https://www.mayoclinic.org/departments-centers/international/appointments
It also includes information about applying for financial assistance.

Do you know what type of brain or spinal cord tumor she has? Is she being seen by a specialist where you live?

REPLY
2 replies
twinklez15 | @twinklez15 | Feb 10, 2020
In reply to @colleenyoung "Hi @twinklez15 Candace, I'm so sorry to hear about your daughter. Children should not have to..." + (show)
@colleenyoung

Hi @twinklez15 Candace,
I'm so sorry to hear about your daughter. Children should not have to suffer. I know you would exchange places with her in a heartbeat if you could.

You can find out more information about possibly seeking care at Mayo Clinic by going to this website
International Patient Services https://www.mayoclinic.org/departments-centers/international/appointments
It also includes information about applying for financial assistance.

Do you know what type of brain or spinal cord tumor she has? Is she being seen by a specialist where you live?

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It's a rare cancer the Medulloblastoma high risk.
I would really want my daughter to get treatment by you, tell me is there any way that you can help her? She has been to her specialist.

REPLY
twinklez15 | @twinklez15 | Feb 10, 2020
In reply to @colleenyoung "Hi @twinklez15 Candace, I'm so sorry to hear about your daughter. Children should not have to..." + (show)
@colleenyoung

Hi @twinklez15 Candace,
I'm so sorry to hear about your daughter. Children should not have to suffer. I know you would exchange places with her in a heartbeat if you could.

You can find out more information about possibly seeking care at Mayo Clinic by going to this website
International Patient Services https://www.mayoclinic.org/departments-centers/international/appointments
It also includes information about applying for financial assistance.

Do you know what type of brain or spinal cord tumor she has? Is she being seen by a specialist where you live?

Jump to this post

Tell me Colleen is there any chance that you can call me perhaps I called your clinic now and the consultant told me that they still closed now, as you know I'm from South Africa and our times are different when it's morning by us then it's night time by u guys!
If I can get my daughter to your clinic I will do it in a heartbeat, if by any chance you tell me that you going to make arrangements for her to come for treatment that side please!

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 10, 2020
In reply to @twinklez15 "Tell me Colleen is there any chance that you can call me perhaps I called your..." + (show)
@twinklez15

Tell me Colleen is there any chance that you can call me perhaps I called your clinic now and the consultant told me that they still closed now, as you know I'm from South Africa and our times are different when it's morning by us then it's night time by u guys!
If I can get my daughter to your clinic I will do it in a heartbeat, if by any chance you tell me that you going to make arrangements for her to come for treatment that side please!

Jump to this post

Hi @twinklez15, yes, time zones can be a challenge for international patients. Fortunately there is also an online form you can fill out to make the request at any time of day. Here is the link https://www.mayoclinic.org/forms/international-patient-appointment

I encourage you to fill out the form. This is the most efficient and direct way to request an appointment. Alternatively, you can ask your daughter's specialist to submit a referral.

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 11, 2020
In reply to @rose4622 "Thank you Colleen young. We will call." + (show)
@rose4622

Thank you Colleen young. We will call.

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Hello @rose4622
I hope your daughter is getting treatment. If you can provide an update, I'd love to hear from you.

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