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Stem cells for hearing loss. Someone talked

Posted by mari @mari, Mar 28, 2019

Has anyone heard of having stem cells for hearing loss. Someone talked about having it done but, I cannot find any info?

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navazo | @navazo | Apr 1, 2019

Hello there. You can find a very good Katherine Bouton article talking about it on psychologytoday.

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1 reply
lindahearing | @lindahearing | Apr 4, 2019

I have a profound hearing loss and just applied for two studies, one at Columbia university and one at Johns Hopkins. It's with a drug called CGF166. Both are looking for candidates. You must have a severe to profound hearing loss and be in good health between the ages of 29 and 75.

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1 reply
katherinebouton | @katherinebouton | Apr 7, 2019

@lindahearing, I thought the Columbia study was on hiatus right now. Was your application accepted? It's part of a three institution study -- Columbia, Hopkins and the University of Kansas. It's not stem cell though. It's tissue regeneration using their drug CGF166.
Here's a description of the trial from the government clinical trials website: https://clinicaltrials.gov/ct2/show/NCT02132130

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1 reply
barbaraswan22 | @barbaraswan22 | Apr 7, 2019
In reply to @lindahearing "I have a profound hearing loss and just applied for two studies, one at Columbia university..." + (show)
@lindahearing

I have a profound hearing loss and just applied for two studies, one at Columbia university and one at Johns Hopkins. It's with a drug called CGF166. Both are looking for candidates. You must have a severe to profound hearing loss and be in good health between the ages of 29 and 75.

Jump to this post

Lindahearing: can you provide a link or more directions on how to become a candidate? thanks

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carolyn odio | @carolynodio | Apr 8, 2019

There is an article in the magazine, Scientific American, "Out of the Silence" on gene therapy, December 2018 issue. Here is a quote from that article, "One main test of restored ear function involves exposing the rodents to a sudden, startling noise to see if they jump. Many did: the once deaf mice could hear."

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katherinebouton | @katherinebouton | Apr 8, 2019

Thanks. i hadn't seen that. Will read it right now!

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carolyn odio | @carolynodio | Apr 8, 2019

If you search YouTube for: cliff olson aud gene therapy. This Audiologist has several videos on Stem Therapy.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 10, 2019
In reply to @navazo "Hello there. You can find a very good Katherine Bouton article talking about it on psychologytoday." + (show)
@navazo

Hello there. You can find a very good Katherine Bouton article talking about it on psychologytoday.

Jump to this post

Welcome to Connect, @navazo. I believe this is the article to which you refer:
- Will We Cure Hearing Loss? https://www.psychologytoday.com/us/blog/what-i-hear/201806/will-we-cure-hearing-loss

Navazo, what is your experience with hearing loss?

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camber | @camber | Jun 4, 2019
In reply to @katherinebouton "@lindahearing, I thought the Columbia study was on hiatus right now. Was your application accepted? It's..." + (show)
@katherinebouton

@lindahearing, I thought the Columbia study was on hiatus right now. Was your application accepted? It's part of a three institution study -- Columbia, Hopkins and the University of Kansas. It's not stem cell though. It's tissue regeneration using their drug CGF166.
Here's a description of the trial from the government clinical trials website: https://clinicaltrials.gov/ct2/show/NCT02132130

Jump to this post

CGF166 is a virus or derivative but they don't tell you how it works or helps. I was hoping it would five more details and how and why stuff

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