ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

@leet3415
I had trigger finger after carpal tunnel surgery. I didn’t want surgery to fix that so lived with it until I couldn’t move my finger, unbend it, without forcefully moving it with lots of pain. Started getting injections which helped for a couple months. Gradually after probably a year of injections it was improving. I have no problems with it today. So hang in there. Give it time and hopefully it may just work for you also.

Did Mayo clinic try a neurectomy on you after unsuccessful treatment with trigger point injections? Did your pain get resolved? Over in the Netherlands there are doctors that actually specialize in ANCES. I am taking 1200mg of gabapentin 3 times a day...pain does not go away but it seems to help somewhat. I am debating whether or not to go to Mayo or the Netherlands...would appreciate your feedback. Lisa

Hello, my question is how did you get diagnosed with Acnes? My 14 yr old daughter has been in unbearable pain right side stomach for 3 years. Every test is normal. She is missing school and friends and we still are in same place we were at from the beginning . She is currently on cymbalta from her neurologist. We have gone through all(most) meds for GI. She also has nausea and vomiting ( up to 17 x a day) She just had an MRI done and of course normal! Any advice you can give ? We have been to three hospitals. Still no diagnosis. Thank you for any help you can give.

Have her checked for Mesenteric Artery Ligament Syndrome

Thank you!

I believe I got this syndrome. I am a former Gastric Lapband patient. The device broke twice. I have had terrible spasms for 13 yrs and can not find anyone to investigate if I have this syndrome. After all the reading and research I have done, I cant seem to find a doc who can test me for this or even has heard of it. I went back to Bariatric, he said its prob nerve damage, so I followed up and I went to neurologist, and he can not help me, I went to pain management, they can not help me. I called the gastro.. they have no clue. Please if anyone knows who I would go to for this problem please let me know. Again I suspect its Abdominal cutaneous nerve entrapment syndrome.. I fit this to a T

Hi @fireball59, welcome to Mayo Clinic Connect. Please meet other members who are talking about abdominal cutaneous nerve entrapment syndrome (ACNES) in this discussion. Like you @leet3415 has seen many doctors and was finally diagnosed with ACNES at Mayo and @wancio mentions experts in the Netherlands.

Here's another discussion that may interest you.
- Has anyone been diagnosed with Abdominal Wall Pain https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-abdominal-wall-pain/

In this video, Mayo Clinic gastroenterologist, Dr. Amy Oxentenko talks about an article published in Mayo Clinic Proceedings, detailing the complexities of diagnosing chronic abdominal wall pain – a condition that seems elusive to any workup.

Almost 3 years in severe pain with NO HELP. I finally diagnosed myself! Twenty three (23) doctors claimed they "never heard of A.C.N.E.S." so my stack of medical literature was ignored, as was my horrendous pain. Can't sit for nearly 3 years. I repeatedly posted on this site and others, no response to A.C.N.E.S, and NOW you're saying it's COMMON? Central sensitization has worsened the pain. I had all the hallmarks: prior abdominal surgeries, positive Carnett's, and trigger point injections but only temporary relief..21 stupid prescriptions that did nothing. This month I FINALLY FOUND A PHYSICIAN WHO LISTENED, and I underwent resection of anterior cutaneous nerve branches at T7, T8, and T9, with pathology reporting three traumatic neuromas. Gee, I'm SOOOO glad you figured it out. Congratulations.

Hi wancio, despite the Mayo Clinic Proceedings (2019) that Dr. Oxentenko cites, Mayo refused treatment, the 2nd time with a form letter.
I was headed to the Netherlands when COVID hit and flights shut down. Three years of horrendous pain with NO help: I had surgery5/5/2020 from a physician who finally accepted my research (Mayo did not)...he did resection of T7, T8, and T9 traumatic neuromas. I would head to the Netherlands before I'd go to Mayo, which only climbed on the 'bandwagon' with her recent video.

@rritam:Really! The only "complexities" in treating A.C.N.E.S. are physicians' ignorance of the condition.