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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome
Chronic Pain | Last Active: Apr 2 2:07pm | Replies (305)Comment receiving replies
Hello, my question is how did you get diagnosed with Acnes? My 14 yr old daughter has been in unbearable pain right side stomach for 3 years. Every test is normal. She is missing school and friends and we still are in same place we were at from the beginning . She is currently on cymbalta from her neurologist. We have gone through all(most) meds for GI. She also has nausea and vomiting ( up to 17 x a day) She just had an MRI done and of course normal! Any advice you can give ? We have been to three hospitals. Still no diagnosis. Thank you for any help you can give.
Replies to "Hello, my question is how did you get diagnosed with Acnes? My 14 yr old daughter..."
Look for a positive Carnett’s test. It’s them pressing on the area to check for pain from receptors.
I know your post is a little older, but curious if she has had a diagnosis? I suffer from something similar called AIP (accused intermittent porphyria). I'm now 60, but a lot of times starts in girls when they start their period. By her age wondering if maybe worth looking into by a hematologist. A lot of doctors have never heard of. How they found mine is I had given a urine test and by following morning had turned black in fridge at doctors office.
It is intermittent so unless happening at that time, hard to diagnosis.
I wish you and your daughter all the best, she is way too young to deal with that much pain.
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Have her checked for Mesenteric Artery Ligament Syndrome