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leet3415 (@leet3415)

ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Oct 19 11:01am | Replies (181)

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@mkirby19

Hello, my question is how did you get diagnosed with Acnes? My 14 yr old daughter has been in unbearable pain right side stomach for 3 years. Every test is normal. She is missing school and friends and we still are in same place we were at from the beginning . She is currently on cymbalta from her neurologist. We have gone through all(most) meds for GI. She also has nausea and vomiting ( up to 17 x a day) She just had an MRI done and of course normal! Any advice you can give ? We have been to three hospitals. Still no diagnosis. Thank you for any help you can give.

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Replies to "Hello, my question is how did you get diagnosed with Acnes? My 14 yr old daughter..."

Have her checked for Mesenteric Artery Ligament Syndrome

Look for a positive Carnett’s test. It’s them pressing on the area to check for pain from receptors.

I know your post is a little older, but curious if she has had a diagnosis? I suffer from something similar called AIP (accused intermittent porphyria). I'm now 60, but a lot of times starts in girls when they start their period. By her age wondering if maybe worth looking into by a hematologist. A lot of doctors have never heard of. How they found mine is I had given a urine test and by following morning had turned black in fridge at doctors office.
It is intermittent so unless happening at that time, hard to diagnosis.
I wish you and your daughter all the best, she is way too young to deal with that much pain.