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Post Ablation Recovery – Need Help!!

Heart Rhythm Conditions | Last Active: Jun 11, 2019 | Replies (30)

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@rubywitch67

To sayaboleh…….Thanks for your reply and I'm sorry I haven't replied soon. It's been a crazy week full of "out of town" guests for 8 days and it left me exhausted. The first thing about YOUR reply that caught MY eye was when you said....."It sounds like you were being cardioverted every few months and I am curious whether it was something you had requested, or prompted by your EP" I am now wondering if you have confused my post with another as I have NEVER undergone a cardioversion. 10 years ago my cardiologist diagnosed me with CAD and test showed that I had blockage, so I had two stents placed. The problem was essentially solved and I have seen him every 6 months for follow ups and lab work. When my PVC's increased and became bothersome to me, he had me wear a Holter which showed AFIB episodes. This was in October of 2018, he started me immediately on Xarelto and we discussed antiarrhythmics at that time. When first diagnosed, I did a lot of research about antiarrhythmics, both on Google and in the two AFIB support groups I had joined. What I read and what people had said about their own experiences with antiarrhythmics, I came away with a rather negative attitude about these drugs. I have severe panic disorder and just one of the "amusing" ways it manifests itself is in health anxiety (NOT hypochondria) and from personal experience, side effects of medications. My cardiologist is aware of this problem and it was his belief that I probably would not be successful with the antiarrhythmics, so he suggested I discuss this with an EP. We set up an appointment and while waiting for that, I had an echocardiogram done. I live in a rural area and we only have ONE EP that must cover 3 counties...….it took until late January 2019 to get an appointment. By this time, my AFIB episodes were getting more frequent and lasting longer. I was told I had paroxysmal AFib because the episodes stopped on their own. The EP discussed options, one of which was trying antiarrhythmics or ablation. He said he had read of my anxiety in relation to the antiarrhythmics, and believed that for me, an ablation would be the better choice. I talked with my cardiologist and he agreed. Many people in the support groups agreed. So I set up an appointment for the procedure which wouldn't take place until March 20th. So......from the point of diagnosis until the procedure, only 5 months had passed. I seemed to be doing fine on the Xarelto with only some minor spells of dizziness when I first began taking it. The AFIB was pretty quiet during the day but got pretty bad after I had eaten dinner and would last anywhere from 2-6 hours. I thought it odd that it began almost precisely at 8p almost every night and naturally I began to wonder if this was being triggered by my anxiety. I, personally, don't know of ANY disease that strikes at the same time every day! (For anybody who has managed to read this far into my "blog," I give you a lot of credit and my thanks!) The day of my procedure came and needless to say I was terrified. Even though I had previously been through a cardiac laparoscopy procedure for the stent placements, I think the idea of someone "burning" my heart was freaking me out. All went well with the procedure but apparently, I had a bit of a rough time coming out of the general. Nothing life threating, it just took quite a bit longer than "normal." But once I WAS out of it, I felt OK......well, as "OK" as anyone can expect. The next day as I was being discharged, I was told what to expect during this "blanking" period. Among the things I was told I could look forward to was a few days to a week of feeling short of breath due to the swelling of my innards from all the mucking about they had done. (My procedure took a little over 6 hours) I did, indeed, experience many of the side effects, including the shortness of breath, which did improve after a week. And it is at THIS point that I wrote to you folks because the shortness of breath did not go away completely. I am just now (June 2019) starting my third month of recovery and feel, at times, that I can't get a deep breath. I'm not even sure if one would consider that shortness of breath, as I can climb stairs and do yard work and take care of the livestock and not have to stop to "catch my breath." (At least, any more than any other time when you're working hard) Which brings us back to my anxiety. After that first week when the REAL shortness of breath stopped, which had made me feel very anxious, I kept trying to take one deep breath after another. Anybody who has tried that knows it's damn near impossible. I'm not talking about the kind of deep breath you take when the doctor is listening to your heart, I'm talking about the REALLY, REALLY deep breath that feels good and "cleansing." The more I tried and the more times I failed, the more anxious I became until I have reached the point I'm at now. Which I think is a rather unhealthy point of obsession about my breathing. I DID call my EP's office and had a long talk with his PA and we both concluded that since I did not have this problem until AFTER the ablation, it was almost a given it was my anxiety. The PA did order another echocardiogram, which I just had Thursday, May 30th. The very next day, my cardiologist wrote and said "everything looks really good. Have a great week-end." So.....while this WAS incredibly reassuring and my shortness of breath seems "less," I am STILL monitoring my every breath. I realize that many of you are rolling your eyes in exasperation about my stupid anxiety, I am asking if anyone out there who has had an ablation has ever felt this shortness of breath or a feeling of not being able to get enough air......or am I truly just doing this to myself? I am REALLY sorry for being such a pain in everyone's rear.....I'm alone and scared and have nobody to talk to about this. (Even my dog yawns when I talk to him now. How pathetic does THAT make me!) Thank you from the bottom of my wonky heart.

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Replies to "To sayaboleh…….Thanks for your reply and I'm sorry I haven't replied soon. It's been a crazy..."

@rubywitch67 Hi there -- You're right. It was not you with the multiple cardioversions. I was indeed confused. I have since heard about someone else who was going to the ER to get cardioverted every month.... So there. Hope they have good health insurance! It is a very simple procedure really and over in a few minutes. I am not sure about a monthly frequency though - hopefully mine lasts at least 6 months. Yes, indeed it is very scary to have to deal with afib and other symptoms alone. I am actually feeling a lot better now than when I used to years ago when each episode would send me to the ER in distress. My symptoms were a lot more severe then and I credit the multiple ablations I've had with for the way I feel now when I have an episode, it is definitely a lot more tolerable. There was this EP who kept reminding me that 'Afib will not kill you'. Somehow I did not find that very reassuring. It does not matter what they are saying when your HR is running about 180 bpm. I think I know what you are referring you with the deep breaths -- I sometimes have trouble too. There are also times when I am acutely aware of every little sensation in my chest. I try not too focus too much on it and just go about my day - I feel so much better that way. I hope you find ways to distract yourself. I would say you're doing remarkably well if you can climb stairs and take care of livestock! All the best -- Mary

Hi @rubywitch67,

I just wanted to tell you are not being such a pain in everyone's rear, and that it’s absolutely okay to feel bad for yourself or your situation – but more importantly, don’t forget to be kind and encouraging to yourself as well.
Even though managing a chronic condition or dealing with debilitating symptoms can be a tough journey, you are not alone. I’m so happy that you have chosen to be an active, participating member of the Connect community – we often feel like what we have to say is of not much value, but it is amazing what your shared experiences can mean to other members!
We all may have different causes of the battles we are fighting, but the battles themselves are the same, so I hope you know that you are in a good place to ask and get the support you need.