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Living with Prostate Cancer: Meet others & introduce yourself
Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.
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Let's start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?
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HugInterested in more discussions like this? Go to the Prostate Cancer Support Group.
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I would talk to a radiation Oncologist in addition to the urologist. I'm 72 my PSA was 11.2 and my Gleason was 4 + 3. In July I went to Mayo, Rochester and met with both departments and decided to go with SBRT 5 treatments in 10 days. I chose radiation over removal because I didn't want to risk incontinence. In July I started on Eligard, an ADT to shrink the prostate, cutting off testosterone starving the cancer. In September I had the radiation and the only side effects were from the Eligard, Hot Flashs and night sweats plus needed Flomax for about 3 weeks. Returning to Mayo this mid-March to meet with my radiation Oncologist for a 6-month follow-up. Good luck to you.
Consulted at Mayo yesterday, scheduled for MRI there tomorrow. Fingers crossed,
It’s the approach Mayo is taking pending MRI results.
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1 ReactionDX on 7/23/18 Gleason 9
When I was doing my treatment research my final decision was between HIFU and FLA focal laser ablation. They are both ablation methods that work well.you may want to research FLA if you have not. Talk with the Sperling clinic. Dr Sperling in Florida. I wish you well.
@mbartosch, you are certainly not alone in having to decide on treatment options for prostate cancer. There are several discussions in the group that weigh the pros and cons of choice, for example:
- Prostate cancer: What treatments did you choose? Results? https://connect.mayoclinic.org/discussion/prostate-cancer-4/
- prostate cancer treatment choices https://connect.mayoclinic.org/discussion/prostate-cancer-treatment-choices/
Living with UC, you may also be interested in this discussion:
- Radiation for Prostate Cancer with Ulcerative Colitis https://connect.mayoclinic.org/discussion/radiation-for-prostate-cancer-with-ulcerative-colitis/
@tconama, all the best with the MRI today. I look forward to hearing what you learn and what treatment options you'll be considering.
Welcome @griff0351. I see you were diagnosed in 2018. How are you doing today?
MRI done last night. Went smoothly, awaiting results. GlucoGen used to quiet the gut as well as Dotatem for contrast. No eCoil used.
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1 ReactionSome people on this thread have asked questions about biopsys. This recent study might help in looking at the traditional 12 sample transrectal biopsy done by many urologists and the mMRI Targeted biopsys. It's clear from the research that, if you can get it, the mMRI is a better choice.
The authors of this multicenter, randomized, noninferiority trial compared magnetic resonance imaging (MRI)–targeted biopsy with the standard systematic 12-core transrectal ultrasonography (TRUS) biopsy procedure in men with clinical suspicion of prostate cancer. MRI-targeted biopsy in men with a PI-RADS score ≥3 was noninferior to standard TRUS biopsy, with the detection of clinically significant prostate cancer in 35% of patients undergoing MRI-targeted biopsy versus 30% with the TRUS biopsy. In addition, 37% of patients in the MRI-targeted group were able to avoid prostate biopsy due to low PI-RADS score.
These results indicate that MRI-targeted biopsy procedures may allow for fewer prostate biopsy procedures with similar rates of detection in men with clinical suspicion of prostate cancer.
– Emily Miller, MD
Here is the conclusion of a clinical trial that was published 1.5 years ago. Things might have changed since them. This was reported by the NIH (National Institute of Health).
Conclusion: Focal laser ablation is a promising technique for treatment of clinically localized PCa and should ideally be performed within approved clinical trials. So far, only few studies have reported on FLA and further validation with longer follow-up is mandatory before widespread clinical implementation is justified.
It seems that at least in 10/2019, FLA was just in clinical trials. Here is a link to the study, https://pubmed.ncbi.nlm.nih.gov/30671638/
I chose to use the FLA approach with Dr Sperling in Florida, there were no clinical trials in 2014 when I was diagnosed. It really was a simple procedure and I did it 2 times once again in 2018.