I'm having multiple odd episodes that are keeping me undiagnosed. Help

Posted by johnwes5819 @johnwes5819, Mar 10, 2019

Hello,

I posted before in another group in its entirety but I think it's too broad and there could be a multitude of theories and explanations. So I'm going to break my story down into my most bothersome episodic symptoms. To start, everything on the surface looks like panic disorder or anxiety. However, my different episodes seem to be helping each other keep me feeling frantic more days than not so on the surface it looks like anxiety. I've had lots of lab work testing including thyroid, Lyme, sleep apnea home test, brain MRI, spine MRI, abdominal ct scan, and way too many doctor visits with no answer, but they do agree on one thing. The symptoms are weird and seem to be more than just anxiety. There are little bits here and there but unfortunately not enough to go on.

Keep in mind these episodes aren't all going on at the same time but they're not giving me any recovery time and feel like i'm sinking further down the hole. It's like fighting 5 bullies one at a time and losing. Just as you feel like you can get up another bully hops in.

Episode 1: After waking up with head pressure, teeth chattering, shivering, lower back pain, and sweating. Oral temperature is ALWAYS between 93.8 F and 94.8 during these episodes. Also, every day is constant cold hands and feet that never happened until all of these episodes started.

Episode 2: Brain fog, head pressure that feels like you're being pushed down when standing (like when you've had one too many drinks), usually later in the day when that feeling wears off, I'll have adrenaline body tingling, uncontrollable thoughts of self-harm and head chatter. (Not dwelling on things or worried about things, it's just the mind doing what it does and I have no control.) Also, my eye will twitch like crazy before and during these.

Episode 3: When standing for a long period of time, like cooking or washing dishes, and sweating starts to happen my heart rate increases and get extremely dizzy and feels like I'm being physically pulled down.

Episode 4: An overly excited feeling, almost like needing to yell or run to get adrenaline out, Heart rate is low.

Episode 5. Sharp colon pain, yellow stools (frequently), stools that look sickly or unhealthy, and constipation more often than not. I had a colonoscopy recently and I was told everything looks good.

I've tried SSRI's and benzodiazepines and they don't stop these episodes from occurring. I've tried strict diets and those don't help.

If you have any thought about even one of these episodes please don't be shy to comment. Thank you so much for taking the time to read.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

John I mentioned this very thing that I am in the process of testing for and that is Gadnolinium in your body, which is what is used to intense the pictures on a MRI. Some of the very items you are mentioning as results this dye, doe not all are mention that you describe, but who knows. I am doing the test , which is a 24 hour urine test and found that my hospital lab does the test and Lab Corp does not. I have some of the symptoms and I am doing the test to rule out regular symptoms for NATURAL ageing process.

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I really believe that 9 times out of 10, it is medications that cause a myriad of health issues. I cannot emphasize enough that one must look up and learn about the side effects of any drug you take. And aim to get replace the drugs with lifestyle changes...where possible. I suffered for a year with coughing fits only to discover that it was the blood pressure medication that was causing them. How did I find out? The doctor never asked, "Oh, btw, do you cough much?". No, I decided to check the side effects of the triamterene & HCTZ and sure enough, COUGHING was a big side effect. Had I known I could have spare myself a year of coughing fits...that actually caused a bladder cystocele that I now have to have operated on. I am telling you, RESEARCH anything and everything you put into your body because it is never without consequences! And you are the only person who is really invested in improving your health. The doctor is not.

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@afrobin

I really believe that 9 times out of 10, it is medications that cause a myriad of health issues. I cannot emphasize enough that one must look up and learn about the side effects of any drug you take. And aim to get replace the drugs with lifestyle changes...where possible. I suffered for a year with coughing fits only to discover that it was the blood pressure medication that was causing them. How did I find out? The doctor never asked, "Oh, btw, do you cough much?". No, I decided to check the side effects of the triamterene & HCTZ and sure enough, COUGHING was a big side effect. Had I known I could have spare myself a year of coughing fits...that actually caused a bladder cystocele that I now have to have operated on. I am telling you, RESEARCH anything and everything you put into your body because it is never without consequences! And you are the only person who is really invested in improving your health. The doctor is not.

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I certainly agree about medications. It is very worrisome that many people assume over the counter medications "are safe" and "can't hurt them", too... And, in addition, many doctors aren't aware of all the side effects and new research into drug side effects and how some raise risks for serious consequences. One of my pet peeves - proton pump inhibitors ( any of the heartburn/GERD drugs ending in "ozole" like omeprazole.. rabiprazole.... lasoprazole...brand names include Prevacid and Nexium and many others). I know a woman with ongoing off balance problems, frank vertigo that came and went - neurological symptoms.. not once did any doctor suggest her problems could be related to omeprazole. When she stopped the drug, with great difficulty, no more dizziness... when she took it again, symptoms returned. A search of the FDA literature shows dizziness and frank vertigo were side effects reported from the get-go in the initial trials of the drug (placebo controlled). No, not very common but not insignificant when it happens to you.. the drugs now are known to increase risk of heart attack, kidney disease, several cancers, etc...just one example of over the counter "perfectly safe" drugs. Benadryl and other anticholinergic drugs are another worrisome example..

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Hi slynnb, You're getting me started. I have a particular beef where statins are concerned. My pharmacist told me that years ago the 'normal' level of cholesterol was a certain number. Then Big Pharma reduced what is considered normal. Then it reduced it yet again!...so that today 44% of men over 60 in the US are on statins! They are not innocuous chemicals. There are side effects such as memory loss, muscle loss, liver damage...
Big Pharma is very aggressive and powerful in the US. If a doctor doesn't toe the line and prescribe to their standard, they can be in major trouble. A doctor cannot take the chance of an impact on his career by NOT prescribing statins to everyone whose cholesterol is above Big Parma's 'normal' standard.
The European Society of Cardiology and the European Atherosclerosis Society recommend that only 15% of people 60+ be on statins. Apparently now it is not cholesterol that one should be monitoring to prevent heart attacks and strokes but one's C reactive protein. My husband who has always had very high cholesterol (and who refuses to take statins like his siblings do) has his CRP monitored regularly and because he eats a very healthy diet AND is a big walker, it is normal.
Here is a Canadian documentary that explains that ONLY a man in his forties who has had a heart attack should be on statins.
https://www.cbc.ca/natureofthings/episodes/the-cholesterol-question
And that is my anti Big Pharma rant for the day! LOL

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@afrobin

Hi slynnb, You're getting me started. I have a particular beef where statins are concerned. My pharmacist told me that years ago the 'normal' level of cholesterol was a certain number. Then Big Pharma reduced what is considered normal. Then it reduced it yet again!...so that today 44% of men over 60 in the US are on statins! They are not innocuous chemicals. There are side effects such as memory loss, muscle loss, liver damage...
Big Pharma is very aggressive and powerful in the US. If a doctor doesn't toe the line and prescribe to their standard, they can be in major trouble. A doctor cannot take the chance of an impact on his career by NOT prescribing statins to everyone whose cholesterol is above Big Parma's 'normal' standard.
The European Society of Cardiology and the European Atherosclerosis Society recommend that only 15% of people 60+ be on statins. Apparently now it is not cholesterol that one should be monitoring to prevent heart attacks and strokes but one's C reactive protein. My husband who has always had very high cholesterol (and who refuses to take statins like his siblings do) has his CRP monitored regularly and because he eats a very healthy diet AND is a big walker, it is normal.
Here is a Canadian documentary that explains that ONLY a man in his forties who has had a heart attack should be on statins.
https://www.cbc.ca/natureofthings/episodes/the-cholesterol-question
And that is my anti Big Pharma rant for the day! LOL

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HA! You are preaching to the choir here... latest research shows lowering LDH ( the "bad" cholesterol) to levels many docs recommend increases stroke risk in women, too.. What is most important is the HDL/LDH ratio, but a lot of doctors don't pay attention to it.. just the total and it's easier to write a prescription than to look at all the details, including lifestyle.

REPLY
@afrobin

Hi slynnb, You're getting me started. I have a particular beef where statins are concerned. My pharmacist told me that years ago the 'normal' level of cholesterol was a certain number. Then Big Pharma reduced what is considered normal. Then it reduced it yet again!...so that today 44% of men over 60 in the US are on statins! They are not innocuous chemicals. There are side effects such as memory loss, muscle loss, liver damage...
Big Pharma is very aggressive and powerful in the US. If a doctor doesn't toe the line and prescribe to their standard, they can be in major trouble. A doctor cannot take the chance of an impact on his career by NOT prescribing statins to everyone whose cholesterol is above Big Parma's 'normal' standard.
The European Society of Cardiology and the European Atherosclerosis Society recommend that only 15% of people 60+ be on statins. Apparently now it is not cholesterol that one should be monitoring to prevent heart attacks and strokes but one's C reactive protein. My husband who has always had very high cholesterol (and who refuses to take statins like his siblings do) has his CRP monitored regularly and because he eats a very healthy diet AND is a big walker, it is normal.
Here is a Canadian documentary that explains that ONLY a man in his forties who has had a heart attack should be on statins.
https://www.cbc.ca/natureofthings/episodes/the-cholesterol-question
And that is my anti Big Pharma rant for the day! LOL

Jump to this post

@afrobin @slynnb Regarding prescription drugs, patients do have a choice with their physician. There is a branch of medicine that doesn't promote the use of prescription drugs, but instead tries to prevent a health problem with lifestyle changes. I go to one of these M.D. doctors who is an environmental medicine doctor. You can find a list of them at https://www.aaemonline.org/find.php They are not mainstream and may or may not be in network for insurance plans. The pioneer in this field was the doctor who started this practice, and you can find information on the website. https://www.ehcd.com/

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@carmelo1morrone

John I mentioned this very thing that I am in the process of testing for and that is Gadnolinium in your body, which is what is used to intense the pictures on a MRI. Some of the very items you are mentioning as results this dye, doe not all are mention that you describe, but who knows. I am doing the test , which is a 24 hour urine test and found that my hospital lab does the test and Lab Corp does not. I have some of the symptoms and I am doing the test to rule out regular symptoms for NATURAL ageing process.

Jump to this post

The actor chuck Norris is sueing over that due to his wife having problems after MRIs. The problem is symptoms could be from other things too. I think it would be safe to say if you didn’t have symptoms and then had them after the MRI then it’s possible.

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@jenniferhunter

@afrobin @slynnb Regarding prescription drugs, patients do have a choice with their physician. There is a branch of medicine that doesn't promote the use of prescription drugs, but instead tries to prevent a health problem with lifestyle changes. I go to one of these M.D. doctors who is an environmental medicine doctor. You can find a list of them at https://www.aaemonline.org/find.php They are not mainstream and may or may not be in network for insurance plans. The pioneer in this field was the doctor who started this practice, and you can find information on the website. https://www.ehcd.com/

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I suffer from severe anxiety from getting chronic illness beginning 48 hours after vaccinations. Something is so wrong with the system. And yes BIg Pharma controlls it.

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@shelby99

I suffer from severe anxiety from getting chronic illness beginning 48 hours after vaccinations. Something is so wrong with the system. And yes BIg Pharma controlls it.

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Are you working on your gut biome? I go to a doctor of naturopathy (university graduate in science) and she has me on a gut healing regimen. 80% of our immune system is in the gut.

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@slynnb

HA! You are preaching to the choir here... latest research shows lowering LDH ( the "bad" cholesterol) to levels many docs recommend increases stroke risk in women, too.. What is most important is the HDL/LDH ratio, but a lot of doctors don't pay attention to it.. just the total and it's easier to write a prescription than to look at all the details, including lifestyle.

Jump to this post

I meant "LDL" not "LDH", Also the risk is for hemorrhagic stroke ( of course, always observe the caveat that if something may raise the risk , that doesn't mean it raises the risk for everyone ) and the research specifically is talking about LDL below 70. The current "ideal" LDL tha many doctors push is 100 ( again, in my opinion, they should be looking at the HDL/LDL ratio, primarily). See Neurology, April 10: https://n.neurology.org/content/early/2019/04/10/WNL.0000000000007454.long

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