Fibromyalgia: How do you cope?

Posted by sandymom @sandymom, Mar 8, 2019

Since 1983 fibromyalgia has cost me my job home life. Daily struggles. One day up next down. What to do to cope? See psychiatrist med nurse pcp etc. let me here your story the sufferings this has caused. Any help please!

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Profile picture for Parus @parus

@lioness Thank you for your kind, caring words. I did request something for the nausea. It helps in this area. I have 4 more treatments and the side effects are likely to become worse with more of the vaccine. Worth a try and hopefully it will be worth the discomfort. Trying to not slip into the depression pit where the monsters live.

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@parus I am saying a prayer for you right now. I know it will get better.

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Profile picture for Parus @parus

@lioness Thank you for your kind, caring words. I did request something for the nausea. It helps in this area. I have 4 more treatments and the side effects are likely to become worse with more of the vaccine. Worth a try and hopefully it will be worth the discomfort. Trying to not slip into the depression pit where the monsters live.

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@parus. saltines and ginger ale will help with nausea. When those monsters creep up take a broom to them literally swat them away may make you feel better . Then do what gives you pleasure .

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Profile picture for lioness @lioness

@parus. saltines and ginger ale will help with nausea. When those monsters creep up take a broom to them literally swat them away may make you feel better . Then do what gives you pleasure .

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To all, something that I am just now realising. Several weeks ago a friend gave me some CBD oil to try. She also told me where she buys it. I went to the Spa and picked up one with and external applicator. While there talking to Rebbeca at the counter she also suggested a CBD body massage.
Since I have had body work done to me for over 50 years it sounded good. So I signed up for the next day. I went in an had it. It was the start of a recovery process that I am enjoying! Feeling much like my "OLD SELF" again.
Take the time and budget your $$$'s to have either the CBD Oil treatment or even just a simple body work done.
It is amazing how your body reaacts by haveing something nice done to it rather than having needles stuck in it.
Good Luck and my Thoughts to You!
Sundance (RB)

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I know it has been a few months since your post, but have you heard of the fibromyalgia 2day class that teaches you how to manage symptoms? I am scheduled this next week to participate- so no suggestions yet! I know it it offered through the dept of psychiatry. You provide answers to questionnaires, then meet with the dr for consultation before the class, and the class follows, 2 days from 8-4. I am super excited to see what they can help with as I have been on multiple medications that never really seem to do the trick.
Hope this helps & you start to feel better soon 💚

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Is this fibro class on line or on site? Ongoing? Thanks!

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Profile picture for peggyann69 @peggyann69

Is this fibro class on line or on site? Ongoing? Thanks!

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I took a two day fibro class at the Mayo Clinic in Rochester. My doctor suggested it and helped get me enrolled, there’s a 3 month waiting list.
Not sure about anything being online.

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Thanks! I will look into in Phoenix--I live in Tucson, so an overnight trip is easy to do.

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Profile picture for peggyann69 @peggyann69

Thanks! I will look into in Phoenix--I live in Tucson, so an overnight trip is easy to do.

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@peggyann69 - I'm wondering if you could call the Rochester Mayo Clinic contact for the fibro class and see if they have the same offering at the Mayo Clinic Arizona Campus?

Fibromyalgia Class in Patient Education in Minnesota
-- https://www.mayoclinic.org/patient-visitor-guide/education-centers/patient-education-minnesota/classes/fibromyalgia

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Good Idea--as I could find no such offering on the Phoenix Mayo website but that doesn't mean it isn't happening or at least in the works...

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Profile picture for lioness @lioness

@sandymom I,d like to add my wellcom to you as @parus did .I've had fibromyalgia since the 90,s and it is a chore to have The ups @downs I've had all the meds out there known researching different fibro groups I came across a group that said clinical evidence says we need more magnesium then normal people So I found a product I've been taking for years that helps me called Fibro Malic I get it from Vitacost.com It's not perfect as I still get flare ups but keeps me comfortable for the most part

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@lioness
I did a search on Vitacost for the Fibro Malic and it did not come up. Can you clarify for me what it is you take or send me a link to it please. Thank you.

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