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DiscussionFibromyalgia: How do you cope?
Fibromyalgia | Last Active: Jan 27 7:56am | Replies (204)Comment receiving replies
Replies to "Hi I have been diagnosed with fibromyalgia. 6 years ago. The past week I've had to..."
Hello @rnicoletti, I'd like to add my welcome to @lioness'. You may notice that I merged your discussion titled "Fibromyalgia" in to another discussion of the same title. I did this so the members already discussing fibromyalgia would see your message and have a chance to respond. If you are replying by email, you can click VIEW & REPLY to be brought to the new location of your post and to read through some of the posts already made in this discussion. Here are a few other Fibromyalgia discussions on Connect as well:
Autoimmune Diseases > Fibromyalgia > https://connect.mayoclinic.org/discussion/fibromyalgia-5/
Chronic Pain > Fibromyalgia Pain > https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
@rnicoletti, what sort of things do you currently do to try and help mitigate your fibromyalgia pain and flares?
Welcome @rnicoletti
Welcome to our group. I am sure you will find several suggestions from our group. Please remember that we are not doctors, but can relate what we have gone through, what we have done and most importantly, lend an ear.
I was diagnosed with fibromyalgia about 3 decades ago! It was very unusual for a doctor to be able to identify it back then. As you probably know, the only way to make a dx of fibro is by eliminating other things. And believe it or not, there are still docs out there who don't believe it really is an ailment!
Anyway, since I was dx a long time ago, I am sure the treatments have changed. However, I will share with your what I did since it worked for me.
1. I never go into the deep restorative sleep. I slept well, I THOUGHT, but in reality I didn't. I was ALWAYS tired! I went to sleep tired and I woke up tired. So, after years of resisting, I finally let the doc give me something to help. I took a VERY low dose of amitriptaline (spelling?). Although its use was for anxiety/depression, at a low dose of 10mg, which I took, its use was different. Taking this helped me get into that deep sleep without the effects of a sleeping pill.
2. I started to lose weight. Losing the weight helped to take the pressures off my body and therefore, some of the pain.
3. I started to move. I started to walk for exercise. I was so out of shape (because of the pain and being inactive) my hubby would have to literally push me up hills and drag me by the end of the walk. After a while, I was able to do it all myself! I then started to do it twice a day. Soon after, I started with the gym. I did all kinds a of exercises on all sorts of machines.
4. I went for aquatic PT. The warm water was very soothing.
5. I went to the chiropractor every other week. In between, I went for theraputic massage (not deep tissue, which inflames).
Even with all that, I still did have flare ups, but they weren't nearly as bad. Today, as long as no one presses on my trigger points, I am fine!
I do believe that after you read this, you will see why you are feeling the way you are. You deal with fibro for the rest of your life. It does not go away, it subsides. Being in pain 24/7 is chronic and can and probably will cause some depression and anxiety. Depression because of the inability to live your life the way you want and anxiety because you become afraid to do things because you don't think you will feel well enough. There are therapists who specialize in therapy for people who have chronic pain. It helps to talk to someone about what you are going through.
To sum up, living with fibro is a lifetime of life style changes. It won't go away totally, but you can manage it with the help of professionals who are experienced dealing with fibro.
I wish you all the luck in the world!
Ronnie (GRANDMAr)
@rnicoletti Welcome to connect we aren't Drs but maybe give you info about what helps us.First of all your health is important ,you need to take time to take care of yourself.See a good rheumatologist and have him give you some pain medicine or have you done this? I've had fibro since the 90,s it doesn't go away but there are ways of controlling it except when you have a fibro flare Ginger Tumeric tea is anti inflamatory as well as ice,Hot shower when you hurt Epsom salts in bath or washcloth on spots I use a tens unit for stiff muscles this relaxes them Magnesium is important I take 600 mg.a day Fibro malic is great for this or Mag.Malete Other people have other things these are a few I use But it's important to see a rheumatologist Take your health seriously.