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Fibromyalgia: How do you cope?
Fibromyalgia | Last Active: Jan 27 7:56am | Replies (204)Comment receiving replies
@jamie2020 I was diagnosed with Fibromyalgia in 2000. Came on quickly and I had no idea what was wrong with me. It is called an invisible illness. I seldom mention thus as many do not believe how real the pain is. I live each doing the best I can and some days I do very well. I never know which day will be better. I know some things that do make the fibro worse for me. We are all wired differently. I have learned things here at connect. The most important thing for me is self care. I try not to dwell on the things I have lost and what I can do to continue moving forward.
Replies to "@jamie2020 I was diagnosed with Fibromyalgia in 2000. Came on quickly and I had no idea..."
@parus Hey Parus, well I’m now in rehab hospital going home on Friday. I knew it would happen soon and it did. They withdrew pain meds. I can remember the nights I sat up crying in bed, with no help for pain. We’ll see how things go now. I can’t take nsaids because I’m on a blood thinner. I am scared, but can just pray that I don’t have any of these episodes again. I did do something which I think will help me. I got all the positive, uplifting people here, to write in my notebook happy, forward moving kinds of thoughts for when I’m depressed. Maybe that will help.
So, after a month’s stay for severe cellulitis, it’s over! And I’m healed!
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@parus....mine came on like a thief in the night, right after a difficult pregnancy. Threw me to my knees, crippled my heel cords, causing bleeding in my feet, causing painful spurs. Then it attacked everywhere. Completely bamboozled me, having been a runner and exercise queen. Reduced me to tears. Getting care and getting a diagnosis took time. I was actually relieved when a rheumatologist diagnosed me, somehow that soothed my bewildered head.
After being put on many trial drugs, all not effective, I decided to take nothing, and use natural means to reduce inflamation. Learned to detect a flare coming on and enjoy the occasional reprieve. I quit going to doctors for many years. When more serious maladies came along, I began again seeing doctors. I hate dividing up my medical care, so as much as I csn, I stick to my GP. I'm with you though, self care is essential.