Question for all y'all experts: I was diagnosed with fibromyalgia in 2007 at the age of 21 (to complement my rheumatoid arthritis diagnosis at 19). I've had every drug anyone can seem to think of: Lyrica, gabapentin, pretty much every single antidepressant of every category, SSRIs and tricyclics, lithium, etc, and every version of painkillers: NSAIDs, opiates, plus prednisone and flexeril. I currently take Lyrica, gabapentin for breakthrough pain, flexeril, prednisone, and, uh, I think 4 SSRIs. Keeps me balanced and the pain managed most of the time.

The problem I have is that one type of pain has NEVER responded to ANY treatment, not even heavy opiates. It feels like: my long bones in my arms and legs, from the inside radiating out, have an excruciating migraine. The attacks are transient and last 5-20 minutes, and they are totally debilitating, They're close to a 9 on the pain scale. It'll just be one bone at a time usually, but sometimes both my thigh bones at the same time, and I'm worrying I might have an aneurysm from trying so hard not to scream. Doctors sort of weakly tried vitamin D and magnesium (which helped the regular fibro!) and nothing has changed. They don't have an answer, so they brush it off.

Has anyone experienced something like this? If so, have you found a treatment that works?