My aunt had tumor removed and then the chemo and radiation, its been 9 most since her surgery and she is having paranoid delusions and is afraid to sleep at night in her home. What can we do for her, please anyone dealt with anything like this?
Hello @sherry73 I am sorry to read of your Mom's situation. That is tough for sure!
My wife suffered from many different types of imaginary issues with her brain tumor. Auditory, visual, and many olfactory. Very challenging for sure! She seemed to cycle through them. I remembrer one night being woken from a deep sleep by my wife talking to me, but while I was laying next to her in bed, she was certain I was standing up on her side of lthe bed.
I know each patient and their brains are different, but in my wife's case her neuro doctor told us these were due to the brain trying to work within a new damaged environment.
Hello and welcome to Mayo Connect @lovesheep123 I noticed this looks like your first post here. I am Scott and while I have not had this type of tumor my wife did. It was discovered in her frontal cortex.
It sounds as if you had surgery on your tumor and it was not all able to be removed. This was also the case with my wife.
There are lots of folks here who I am sure can also add their situation and diagnosis.
I was diagnosed with an Oligodendroglioma IDH-mutant, 1p/19q-codeleted (grade 2) tumor. I had some seizures and I was found out I had a tumor in the ER. I underwent awake brain surgery And I am just finishing proton beam radiation therapy. Next, I will start my chemotherapy. I'm not looking forward to it. When I first woke up from my surgery I needed a lot of help with pretty much everything. Now, aside from driving, my brain has basically rewired itself and I'm pretty much able to care for myself again. I'm in my 40's so the loss of independence was a pretty big deal. Thank god for my wonderful caregivers, I appreciate them so much! They never made me feel like a burden and I'm so thankful for that.
I was diagnosed with an Oligodendroglioma IDH-mutant, 1p/19q-codeleted (grade 2) tumor. I had some seizures and I was found out I had a tumor in the ER. I underwent awake brain surgery And I am just finishing proton beam radiation therapy. Next, I will start my chemotherapy. I'm not looking forward to it. When I first woke up from my surgery I needed a lot of help with pretty much everything. Now, aside from driving, my brain has basically rewired itself and I'm pretty much able to care for myself again. I'm in my 40's so the loss of independence was a pretty big deal. Thank god for my wonderful caregivers, I appreciate them so much! They never made me feel like a burden and I'm so thankful for that.
Hello @barb789123 Welcome to Mayo Connect! Nice to e-meet you here, although I am sorry to read of your diagnosis. I am Scott and my wife was also diagnosed with an oligodendroglioma in her 40s. I was her caregiver.
She, too, after her surgery was greatly impacted, but after intensive PT and OT she, too, regained much of her abilities. It's amazing to read of the advances made in treatment of this type of tumor since her diagnosis -- proton beam was just being discussed at the first of her illness.
As a caregiver I appreciated your comment on how much you appreciated their help. Often that is not communicated! What was it you appreciated the most from your caregivers?
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Hello @sherry73 I am sorry to read of your Mom's situation. That is tough for sure!
My wife suffered from many different types of imaginary issues with her brain tumor. Auditory, visual, and many olfactory. Very challenging for sure! She seemed to cycle through them. I remembrer one night being woken from a deep sleep by my wife talking to me, but while I was laying next to her in bed, she was certain I was standing up on her side of lthe bed.
I know each patient and their brains are different, but in my wife's case her neuro doctor told us these were due to the brain trying to work within a new damaged environment.
I wish I had some solid suggestion....
Strength, courage, and peace!
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1 ReactionYes...... 6 years ago..... had resection , they could not get all
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1 ReactionReally no questions ...... mine is in Parietal section with some symptoms....... manageable but not always fun😊
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1 ReactionI have had it for 6 years....... it’s in the parietal section of the brain
I was diagnosed with an Oligodendroglioma IDH-mutant, 1p/19q-codeleted (grade 2) tumor. I had some seizures and I was found out I had a tumor in the ER. I underwent awake brain surgery And I am just finishing proton beam radiation therapy. Next, I will start my chemotherapy. I'm not looking forward to it. When I first woke up from my surgery I needed a lot of help with pretty much everything. Now, aside from driving, my brain has basically rewired itself and I'm pretty much able to care for myself again. I'm in my 40's so the loss of independence was a pretty big deal. Thank god for my wonderful caregivers, I appreciate them so much! They never made me feel like a burden and I'm so thankful for that.
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Helpful -
Hug
1 ReactionHello @barb789123 Welcome to Mayo Connect! Nice to e-meet you here, although I am sorry to read of your diagnosis. I am Scott and my wife was also diagnosed with an oligodendroglioma in her 40s. I was her caregiver.
She, too, after her surgery was greatly impacted, but after intensive PT and OT she, too, regained much of her abilities. It's amazing to read of the advances made in treatment of this type of tumor since her diagnosis -- proton beam was just being discussed at the first of her illness.
As a caregiver I appreciated your comment on how much you appreciated their help. Often that is not communicated! What was it you appreciated the most from your caregivers?
Strength, courage, and peace!