1. < Neuropathy

Five Things I Wish I’d Known Before My Chronic Illness

Posted by elained @elained, Feb 19, 2019

This article is in today's New York Times: Five Things I Wish I’d Known Before My Chronic Illness.

https://www.nytimes.com/2019/02/18/smarter-living/five-things-i-wish-i-knew-chronic-illness-crohns-disease-ibd.html

I hope this link works. If not, just go to today's NYT and Google the title of the article.

Regards, ElaineD

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
Becky, Volunteer Mentor | @becsbuddy | Mar 21, 2019
In reply to @gingerw "@becsbuddy Having something to focus on really helps to distract us from our issues/pains/everyday struggles. Your..." + (show)
@gingerw

@becsbuddy Having something to focus on really helps to distract us from our issues/pains/everyday struggles. Your portrait quilt of your grandson sounds like a winner! Do you have it sketched out where he is doing something he enjoys [not knowing how old he is]? I know with my quilts and artwork having something pictured in my mind and then challenging myself, or marveling at the outcome, to see how different it is from what I had pictured it is such a treat. I have several MEQs which stands for Mind's Eye Quilts that are yet to be done. I have the fabric, I have the ideas, sometimes just don't have the motivation or the time.
Ginger

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@gingerw I love your term MEQs! I’ll have to remember that! I included a photo of the fabric portrait of my grandson—he’s 5. Becky
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3 replies
Mentor
Ginger, Volunteer Mentor | @gingerw | Mar 21, 2019
In reply to @becsbuddy "@gingerw I love your term MEQs! I’ll have to remember that! I included a photo of..." + (show)
@becsbuddy

@gingerw I love your term MEQs! I’ll have to remember that! I included a photo of the fabric portrait of my grandson—he’s 5. Becky

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@becsbuddy How fun is that! Fused, needle turn, or machine applique? That will be an heirloom, for sure!
Ginger

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1 reply
Mentor
Jennifer, Volunteer Mentor | @jenniferhunter | Mar 21, 2019
In reply to @becsbuddy "@gingerw I love your term MEQs! I’ll have to remember that! I included a photo of..." + (show)
@becsbuddy

@gingerw I love your term MEQs! I’ll have to remember that! I included a photo of the fabric portrait of my grandson—he’s 5. Becky

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@becsbuddy That's great! Thanks for sharing it!

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Mar 21, 2019
In reply to @gingerw "@becsbuddy How fun is that! Fused, needle turn, or machine applique? That will be an heirloom,..." + (show)
@gingerw

@becsbuddy How fun is that! Fused, needle turn, or machine applique? That will be an heirloom, for sure!
Ginger

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@gingerw. Thank you for liking my quilt! The pieces are fused because the original focus of the class was on using value. Most people in the class used flesh colors, but I picked blue because I always have to be different. He does look a bit wild n crazy!

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1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | Mar 21, 2019
In reply to @becsbuddy "@gingerw. Thank you for liking my quilt! The pieces are fused because the original focus of..." + (show)
@becsbuddy

@gingerw. Thank you for liking my quilt! The pieces are fused because the original focus of the class was on using value. Most people in the class used flesh colors, but I picked blue because I always have to be different. He does look a bit wild n crazy!

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@becsbuddy Very artsy looking. You got my vote for an interesting piece, bet it made others think they should have tried that!
Ginger

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 21, 2019
In reply to @becsbuddy "@gingerw I love your term MEQs! I’ll have to remember that! I included a photo of..." + (show)
@becsbuddy

@gingerw I love your term MEQs! I’ll have to remember that! I included a photo of the fabric portrait of my grandson—he’s 5. Becky

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@becsbuddy
How exceptional! I'm so glad you shared it.

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crhp194 | @crhp194 | Mar 24, 2019
In reply to @donnariley "I have struggled with pain from RA for 21 years and discovered I have Coronary Artery..." + (show)
@donnariley

I have struggled with pain from RA for 21 years and discovered I have Coronary Artery Disease in 2010 following a heart attack and triple bypass surgery. I have read so much during the past decade regarding both. My biggest complaint has always been joint pain due to inflammation. Ive tried it all...meds, chiropractor, image guided injections, etc. Ive missed out on so many activities over the years. About 6 weeks ago i was blessed to be lead to something new through a good friend i grew up with. I was skeptical at first but trusted her as she had great success with fibromyalgia and RA pain. Its a new CBD fluid (not oil) that is being legally produced by a solid US company (legal with Farm Bill passing in Dec. 2018). Im so happy to say I have no pain now and Im living life again. Happy to share info with anyone who would like to know more. Wishing health and wellness to all. Donna in Texas

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Would love to know where you got the fluid. Am in pain most of the time. Thanks in advance for your generous offer in your post to share the information. Carol

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victoriamb | @victoriamb | Apr 26, 2021

Thank you so much for sharing. I could identify with every single aspect of the article.

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1 reply
athenalee | @athenalee | Apr 27, 2021
In reply to @victoriamb "Thank you so much for sharing. I could identify with every single aspect of the article." + (show)
@victoriamb

Thank you so much for sharing. I could identify with every single aspect of the article.

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Indeed, the article articulates well the struggle with chronic illness. I discovered the author, Tessa Miller, has a book with the same title.

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