Severe Bloating and Distention: How did you find relief?

Posted by htocco @htocco, Feb 18, 2019

Hello,
I have chronic bloating and distention of the abdomen and am very uncomfortable all of the time. I have had a colonoscopy and endoscopy (both negative), have tried a low FODMAP diet for several weeks, with no change. I do take probiotics as well a ginger root and peppermint. I rarely have cramping, except after a bowel movement. After a BM, the distention is more severe for the entire day. My GI doctor is at a lost as to what to do now. It seems much of the GI field is mysterious, and, unfortunately there are no answers for many conditions, including this. Is there anyone out there with similar symptoms? Does anyone have any suggestions for me?
Thank you!
Helen

Interested in more discussions like this? Go to the Digestive Health Support Group.

I have gastroparisis and dumping condition. My stomach looks like I am expecting a baby at 72 years of age. I don't digest food like I should. I know how you feel.

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Sorry to hear about your condition. Are you getting treatment to help with your symptoms?

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@htocco were you able to get a diagnosis for your condition?

Very interested as my symptoms have been near identical.

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@azdavid

@htocco

My current symptoms are VERY similar to your initial post. I sent you a PM. Maybe we can help each other. Hope you are well!

Jump to this post

I have been reviewing my messages and found this. I didn't find any Private Message. Please resend: htocco@sandi.net.
Thank you!

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@azdavid

@htocco were you able to get a diagnosis for your condition?

Very interested as my symptoms have been near identical.

Jump to this post

I have seen three GI specialists. They say my problem is functional, not organic. No real clear diagnosis. No one can help me; just trying to live with it. How about you? Diagnosis? Treatment?

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Sent you an email with some more details. So far I have seen 4 GI specialists, a neurologist, and two primary care physicians. I even had genetic testing. My distention has also been described as functional. After all the tests, diets, and medications there is still no diagnosis. My distention was persistent for about a year. Now, it is aggravated by activity such as walking. Latest direction pertains to exploring dyssynergia. Even though my distention does not have to do with constipation, I had an anorectal manometry test done. The results where somewhat abnormal. May lead to a direction such as being Abdominophrenic Dyssynerigia combined with Pelvic Floor Dyssynergia. I have an upcoming appointment to meet with a physical therapist at Mayo Clinic.

Some information I came across about dyssnergia
https://drossmancare.com/misunderstood-functional-gi-disorders/

Maybe this will help lead your doctor's in a direction.

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Hi htocco, not many GI specialists know anything about your gut. They are some of the most misinformed or non-informational group of doctors you'll meet.I don't like GI specialists, one iota. Sorry, it's the truth. You'll may have to go long and hard to find one who knows their specialty.

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@oakbourne @azdavid Generalities about a subject are rarely helpful.. it is like in Statistics, a sample of 1 or 2 or even 3 person's opinions are meaningless in a general population. If you have actual evidence and experience with a specific issue with a specific doctor.. you can cite that case. It is important with your health to avoid being taken in by hearsay, advertising, and a single opinion of others. Mayo MN GI Department is rated by a credible organizations.. for example, the U.S. News &World Report examined 50 of the leading GI Hospitals/Clinics.(their methods have been respected by those in the field for years/decades). : The top ten hospitals for gastroenterology and GI surgery were ranked as follows:

Mayo Clinic, Rochester, Minn.
Cleveland Clinic, Cleveland, Ohio
Massachusetts General Hospital, Boston
UCLA Medical Center, Los Angeles
Johns Hopkins Hospital, Baltimore
Cedars-Sinai Medical Center, Los Angeles
UPMC-University of Pittsburgh Medical Center
Mount Sinai Hospital, New York City
Mayo Clinic, Phoenix
Houston Methodist Hospital
Check out the way these GI and other specialties are rated..
https://health.usnews.com/health-care/best-hospitals/articles/faq-how-and-why-we-rank-and-rate-hospitals

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Hello,
Have you found anyone to help you?
Helen

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Hi! I'm posting here because this pain and discomfort has upended my life and I'm worried that something is seriously wrong. since november 2019 i've been experiencing a lot of bloating as well as a feeling of pressure (like a balloon) in my upper abdomen, soreness/pain when i press on my stomach around my belly button, especially to the right of it.

i get full really quickly and have gradually lost my appetite completely...now i can't eat any more than a couple bites of food at a time and i become extremely nauseous. often it feels like food is sitting in my stomach right below my ribs. i sometimes feel a pressure in my throat and have difficulty swallowing. i have been on pantoprazole and omeprazole without any change in symptoms. also went dairy and gluten free a long time ago but it has not helped. i got an upper endoscopy and it didn't reveal any problems, also got a HIDA scan w/ CCK check that also did not show any problems with my gallbladder. i'm in my early 20s and was a great long distance runner in college and loved going out to eat so much but now i just sit at home in pain and i have become depressed. if anyone has ever experienced something similar please let me know i would appreciate it a lot!

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