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GI Disorder and Internal Shaking

Digestive Health | Last Active: Mar 7 3:06pm | Replies (368)

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@gigiraj

@hopeful33250 and @kanaazpereira thank you SO much for your consideration and resources! I really appreciate it. It has confirmed for me that this is definitely originating along my gut-brain axis. I am looking into VZV as was mentioned in the article. POTS does not really fit but I am looking into it as well.

I haven't had headaches so much as a building pressure in my head that goes away when I passed built-up gas. I looked at @ calical's post about their seizures and luckily, what I am experiencing is nowhere near that severe. @ tigertoo's suggestion on Transverse Myelitis is a possibility (according to symptoms on John's Hopkins' website): I have bowel issues, my legs/arms can sometimes feel heavy/odd, and sometimes I have pain [more like soreness] in my lower back/hips when I've eaten but am constipated. I am also looking into Vagus Nerve Dysfunction as that is what fits my symptoms closest (pain in ear, occasional pain in vocal cords & hoarse voice = possibly due to acid reflux, unusual heart rate)

However, my internal shaking and increased heart rate has temporarily stopped! There could be a number of reasons why this is:
1) I had been anxious about my heart for two weeks. I went to the Emergency Room and started crying. After crying and having confirmation from the ER that I wasn't having a heart attack, I felt calm and comfortable so my shaking was potentially because of a buildup of stress and lack of sleep.
2) I started taking Miralax and Prevacid on the 14th as my doctor prescribed. Perhaps they are just now kicking in.

While I am glad my heart tremors have stopped, I am afraid that this is just another stop on the way to some disease I need to identify before it's too late. I have had a myriad of symptoms over the years, most of which I believe stemmed from my gut; constipation is the one constant. I have also recently been having a variety of brain fog (trouble visualizing reasoning for instinctive activities, trouble reviewing my thoughts) and have always had very poor blood circulation, pains in breastbone/chest, strange & intense drowsiness after eating, inability to feel hunger except by way of fatigue, and post-constipation pain in the left side of my brain/left eye.

I will still look into getting a heart monitor! And I will most likely post about this in the Brain & Nervous System group as well. If it is not a GI disorder, I'm not sure how to move forward.

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Replies to "@hopeful33250 and @kanaazpereira thank you SO much for your consideration and resources! I really appreciate it...."

Hi, my name is Laura, and I have been having pressure in my head for a long time and it's 24/7. I'm also suffering from contapation. I have to take liquid bowl softener to use the bathroom every day.
I'm also have tingling in both of my hands.
On Tuesday 3/6/19 to see if my food is being digested. I also have some kind of magnigment on or around my heart.
Has anyone been through this? Or knows the outcome?

Hello

I am reading your post and feel relief and anxiety at the same time. I am scheduled to see my gastroenterologist this week. Uneasy as my symptoms are so similar to yours. I was experiencing the internal tremor after starting the famotadine of two months. The tremor stopped and the pain came back. Afterword I started with a tremor only in my left hand and then weeks later the internal tremor started again. I am also experiencing a flutter in my chest. Similarly to a tremor but not as severe as the internal tremor and I only feel it when I sit. I have had so many tests and each one thankfully are negative. I am at the point were I don't want anymore tests because I feel like I will never have a complete answer and are they a combination of issues leading up to one diagnosis. I feel my best when I walk daily and push myself to exhaustion so I can sleep.

This response nails exactly my belief and sxperiance as well. I get pressure due too gas, causes a little brain fog, and nothing serious until every once in a while I feel a build up with some constipation and a full stomach and notice a five to fifteen minute really mild internal tremor through my body that starts “always” in the stomach/gut and radiates to the rest of the body, my neck gets stiff and my muscles get sore. (These usually happen after big weeks of hardwood floor work, which hits my neck and arms the hardest) and whenever the shake starts my soreness radiates more. I take a famotadine or Pepcid and usually subsides. Neck remains sore a stiff but I have had quite a bit of work related pain and accidental injury’s towards my neck. My bowel movements are daily and usually one large movement in the morning before the day starts and rarely do I experiance much constipation. I am only 28 and see constipation and more gut-brain shakes in the future so I’m preemptively searching for small OTC solutions. It’s been probably 6 months since I did a 14 day omeprazole and I’m thinking that would put my gut-brain back in check as I have a hard time sometimes sleeping while digesting snd keeping my acid down I try to avoid taking anything and usually just elevate myself a small bit or use a nose strip to breathe better so my body can fix itself while sleeping. Reading all these comments and responses and even ALL the article posted in the feed about autism spectrum and nephrological connections between gut and health ive come to better understand my body. My father has Parkinson’s and has had it for 8-9 years now. It’s a horrible disease and bless those that have it so u can imagine my worry when I get a small bit of heart pain or tight chest then feel a vibratory/internal tremor happen. It stops me from what I’m doing and causes me to get up and walk the dog or get some fresh air to calm my nerves. I’m glad to see the Prevacid helps with u guys, as I may try that here soon just a small 12 day cycle and be back to feeling my great 28 yr old spirit and energy.

Another question? Has probiotics helped with your issues at all is that something in my young age I could take for a month or a year to avoid the Pepcid/omeprazol reoccurrences? Just want the best gut-Brain connection I can. I see how much this digestion and gut-brian health correlates to the nerves and body. My blood work is always good ive checked last time I felt like this and it is rare i would say a few times per year it kicks up and feels like my stomachs fighting me and not doing it’s normal in and out routine. My solution this time is to keep the pressure down and out and not up in my gut and head since that’s where it all starts. Probably take a famotadine when this occurs and the worry sets in. If I need anything more than a small Pepcid or famotadine I will try the Prevacid/PPI 14 day thing and get back to u guys. I can live with a little pressure around the neck head and jaw but the shakes add more stress than it’s ever really worth and that’s the main focus to me. Thank you guys so much for the feed and thread. If it was 20years ago we’d all just have to suck it up or try some over the counter stuff to see what works and what doesn’t and we’re all blessed to be able to share our stories and our history with each other to better treat ourselves. Much love to you all and I will be back on here checking and reading and posting if I find the Prevacid helps, or if I’ll even need it. I’ve noticed working out and doing little runs almost works the pressure out everytime and reconnects those core muscles together to the brain helping the full motion and fluidity of my intestines to gut and helps relieve pressure after workout is done

Hello! I just came across this post and I'm suffering for all of these symptoms as well. Was wondering if you found relief and a dignosis? Thanks, well wished.

Did you ever figure this out? I just starting having the exact same thing a few weeks ago and we can't figure it out.

Everything you are saying is exactly what I'm dealing with from the internal shaking to the head pressure even the ears and eye issue and it's my left side too. I haven't had a normal bowel movement in a long time I'm guessing that's linked to something. I was wondering about sibo? I wake up with the back of my neck sore alot too

Did you ever find anything out?

I know I am coming to this conversation so late but I am experiencing almost all of the same symptoms you are describing. It's scary and hard to describe to Dr's without them just pushing it off on anxiety. I have always dealt with anxiety and this is not it, atleast not fully.