GI Disorder and Internal Shaking

Wow! I can relate. These sound like some of my symptoms as well. Do you by chance get weak legs? Bladder issues? All my pain and issues stay on my left side.

@hopeful33250 and @kanaazpereira thank you SO much for your consideration and resources! I really appreciate it. It has confirmed for me that this is definitely originating along my gut-brain axis. I am looking into VZV as was mentioned in the article. POTS does not really fit but I am looking into it as well.

I haven't had headaches so much as a building pressure in my head that goes away when I passed built-up gas. I looked at @ calical's post about their seizures and luckily, what I am experiencing is nowhere near that severe. @ tigertoo's suggestion on Transverse Myelitis is a possibility (according to symptoms on John's Hopkins' website): I have bowel issues, my legs/arms can sometimes feel heavy/odd, and sometimes I have pain [more like soreness] in my lower back/hips when I've eaten but am constipated. I am also looking into Vagus Nerve Dysfunction as that is what fits my symptoms closest (pain in ear, occasional pain in vocal cords & hoarse voice = possibly due to acid reflux, unusual heart rate)

However, my internal shaking and increased heart rate has temporarily stopped! There could be a number of reasons why this is:
1) I had been anxious about my heart for two weeks. I went to the Emergency Room and started crying. After crying and having confirmation from the ER that I wasn't having a heart attack, I felt calm and comfortable so my shaking was potentially because of a buildup of stress and lack of sleep.
2) I started taking Miralax and Prevacid on the 14th as my doctor prescribed. Perhaps they are just now kicking in.

While I am glad my heart tremors have stopped, I am afraid that this is just another stop on the way to some disease I need to identify before it's too late. I have had a myriad of symptoms over the years, most of which I believe stemmed from my gut; constipation is the one constant. I have also recently been having a variety of brain fog (trouble visualizing reasoning for instinctive activities, trouble reviewing my thoughts) and have always had very poor blood circulation, pains in breastbone/chest, strange & intense drowsiness after eating, inability to feel hunger except by way of fatigue, and post-constipation pain in the left side of my brain/left eye.

I will still look into getting a heart monitor! And I will most likely post about this in the Brain & Nervous System group as well. If it is not a GI disorder, I'm not sure how to move forward.

This response nails exactly my belief and sxperiance as well. I get pressure due too gas, causes a little brain fog, and nothing serious until every once in a while I feel a build up with some constipation and a full stomach and notice a five to fifteen minute really mild internal tremor through my body that starts “always” in the stomach/gut and radiates to the rest of the body, my neck gets stiff and my muscles get sore. (These usually happen after big weeks of hardwood floor work, which hits my neck and arms the hardest) and whenever the shake starts my soreness radiates more. I take a famotadine or Pepcid and usually subsides. Neck remains sore a stiff but I have had quite a bit of work related pain and accidental injury’s towards my neck. My bowel movements are daily and usually one large movement in the morning before the day starts and rarely do I experiance much constipation. I am only 28 and see constipation and more gut-brain shakes in the future so I’m preemptively searching for small OTC solutions. It’s been probably 6 months since I did a 14 day omeprazole and I’m thinking that would put my gut-brain back in check as I have a hard time sometimes sleeping while digesting snd keeping my acid down I try to avoid taking anything and usually just elevate myself a small bit or use a nose strip to breathe better so my body can fix itself while sleeping. Reading all these comments and responses and even ALL the article posted in the feed about autism spectrum and nephrological connections between gut and health ive come to better understand my body. My father has Parkinson’s and has had it for 8-9 years now. It’s a horrible disease and bless those that have it so u can imagine my worry when I get a small bit of heart pain or tight chest then feel a vibratory/internal tremor happen. It stops me from what I’m doing and causes me to get up and walk the dog or get some fresh air to calm my nerves. I’m glad to see the Prevacid helps with u guys, as I may try that here soon just a small 12 day cycle and be back to feeling my great 28 yr old spirit and energy.

Another question? Has probiotics helped with your issues at all is that something in my young age I could take for a month or a year to avoid the Pepcid/omeprazol reoccurrences? Just want the best gut-Brain connection I can. I see how much this digestion and gut-brian health correlates to the nerves and body. My blood work is always good ive checked last time I felt like this and it is rare i would say a few times per year it kicks up and feels like my stomachs fighting me and not doing it’s normal in and out routine. My solution this time is to keep the pressure down and out and not up in my gut and head since that’s where it all starts. Probably take a famotadine when this occurs and the worry sets in. If I need anything more than a small Pepcid or famotadine I will try the Prevacid/PPI 14 day thing and get back to u guys. I can live with a little pressure around the neck head and jaw but the shakes add more stress than it’s ever really worth and that’s the main focus to me. Thank you guys so much for the feed and thread. If it was 20years ago we’d all just have to suck it up or try some over the counter stuff to see what works and what doesn’t and we’re all blessed to be able to share our stories and our history with each other to better treat ourselves. Much love to you all and I will be back on here checking and reading and posting if I find the Prevacid helps, or if I’ll even need it. I’ve noticed working out and doing little runs almost works the pressure out everytime and reconnects those core muscles together to the brain helping the full motion and fluidity of my intestines to gut and helps relieve pressure after workout is done

Hello @jbjones18 and welcome to Mayo Clinic Connect. I think you are very wise to consider your diet alongside of what medications, OTC or Rx, that you are using. To compliment your considerations for probiotics and gut health, I wonder if you've ever considered journaling your food/liquids to see if you can see a trigger or trend between your food and your symptoms?

Also, do you drink (alcohol)? If so, you may consider trying to cut that out and monitor things one at a time as you cut or add.

That’s a great idea, I’ve been told about trying these online programs that test gluten and other foods with how they react and how tolerant I am so I can base a good diet around that. My diet isn’t all too great usually during the day I do fast food lunch, a breakfast sandwich in the morning and a good dinner each night. I don’t drink alcohol it’s very rare for me to do, maybe a few drinks once a month, if that. Journaling is a great idea as I’ve found marinara and pizza ingredients trigger acid reflux symptoms very heavily on me within 30min of eating them so i stay away. Constipation isn’t much of a thing as I rarely even take acid reducers and just kinda deal with it. When I do I notice stiffer bowel movements. My job is physically demanding so I stay in good shape and get my daily exercise in that way but I do think a 14day otc PPI would help reset my gut and be back to feeling great for several more months the tremor the other night made me do some internalization and get some clarity which u have all helped me with. I’d never heard of the Vagus nerve before and tonight looked up a vagus relax breathing technique trying to take in only a few really good breathes per minute and turned to yawn and felt immediate de-escalation of gas/pressure and still feel in the same relaxed symptom free state which I wasn’t 30 minutes ago when first laying down. So just researching and utilizing the tools I’m finding are really helping already. Thank you @amandajro ur the best I’ll see if these techniques and better diet will eliminate the need for a PPI regimen. Hopefully. I don’t eat my Veggies like I should lol, going to have to start working a salad into the day.

It will be great to keep in touch with you as you go through this to see what is or is not working. Will you update us all on what you are learning as you go?

Hi @hopeful33250, I have been under more stress with all the various diagnoses’s and also with my career being on the line due to my health. That being noted, it may be emotional, although this would be the first time in my life that my emotions react in this way. 😌

Hello,
Has anyone found anything or had any diagnosis from these symptoms?? If you have, please let me know. I’m 46 and desperate.. been having these same symptoms for over 9months now. And i would add a lump feeling in my throat. I’ve been 5 times at hospital er and 6 times at walk in clinics (i live in Quebec, Canada and dont have a family doctor, she retired and am on a waiting list that is very long for a family doctor) I’ve quit smoking in March thinking it would help. But it got worse. Cleaned my diet. Plus visits and treatments to Osteopath, acupuncture and chiropractic. After 6 months of trying to get better i’m still feeling awful and the pains are just getting worst. I’ve been told that it’s anxiety, my nervous system, hypochondria, migraines, IBS ...Not to mention the numerous test, head CT, abdomen, barium swallow, ENT, spine MRI, ultrasound of abdomen, thyroid, pulmonary embolism blood test, chest x ray, basic CBC blood test that always came back clear. The only thing i found out a couple weeks ago, is when i tracked my symptoms and the internal shaking seizures relieved by gas, (neurological disease??MS??)they happen a few days before my period and other symptoms shortness of breath, severe upper stomach pains like burning and twisting, throat tightness, jaw and left arm numbness, left side whole body pains, left sciatica (my knee becomes numb cant walk for long) happens between 8 to 11 days after first day of period, around ovulation. Only one doctor mentioned endometriosis??? Im seeing a gynecologist in a few days. They all say its not life threatening but its threatening my sanity and life as i cant continue feeling invalidated. Doctors think i make no sens cause of too many symptoms. I just want to find out what’s wrong with my body. Please help thank you!

Since August of this year I have been experiencing similar symptoms! I have been seen by the cardiologist and everything has come back negative. I have seen an endo and every test you could think of was ran (24 hr urine test, bloodwork, ultrasound of kidneys, CT of abdomen) and all these tests came back negative. My symptoms have gotten a little better but it is hit or miss everyday. In the beginning it was believed to be an interaction behind medications I was on however I still experience severe indigestion, heart papiltations, weakness throughout my body, internal tremors, restlessness with extreme fatigue and feeling like I am going to pass out. Recently I have been experiencing this more right after I eat for a few hours and then will go away. I am set up to see a gastro next week but I am tired of feeling this way, it has and is interfering with my daily life. I have never had these issues before and I am hoping someone is able to either relate or provide some answers/hope that I will overcome all of this.