GI Disorder and Internal Shaking

Posted by gigiraj @gigiraj, Feb 15, 2019

Hi all. I'm a 21 year old South Asian female and I have been having GI issues for about five years--mainly along the lines of constipation. I do have bowel movements every day but it takes a long time & I am rarely fully cleared out. These GI issues are always accompanied by other health issues (gas, pressure in head, etc). Recently, some scary new conditions have manifested: In the past few weeks, there have been times where my heart starts beating wildly and very fast. Sometimes, when I'm tired and constipated, my entire body feels like its vibrating internally; the shakes aren't visible but it feels like all my muscles are quivering. At this point, I feel a constant shaking/quivering within my body, especially in my heart cavity.

I have had TWO EKG's and both came back normal. All lab tests for diabetes, hypertension, cholesterol, etc came back within normal limits. I am very concerned about this internal shaking. My dad says he found something about how GI disorders can impact muscoskeletal system and since the heart is a muscle, it's contracting and being affected. But I wanted to know if anyone here can help!!!!!!! If anyone knows anything at all please please please let me know!!!!!

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for gigiraj @gigiraj

@hopeful33250 and @kanaazpereira thank you SO much for your consideration and resources! I really appreciate it. It has confirmed for me that this is definitely originating along my gut-brain axis. I am looking into VZV as was mentioned in the article. POTS does not really fit but I am looking into it as well.

I haven't had headaches so much as a building pressure in my head that goes away when I passed built-up gas. I looked at @ calical's post about their seizures and luckily, what I am experiencing is nowhere near that severe. @ tigertoo's suggestion on Transverse Myelitis is a possibility (according to symptoms on John's Hopkins' website): I have bowel issues, my legs/arms can sometimes feel heavy/odd, and sometimes I have pain [more like soreness] in my lower back/hips when I've eaten but am constipated. I am also looking into Vagus Nerve Dysfunction as that is what fits my symptoms closest (pain in ear, occasional pain in vocal cords & hoarse voice = possibly due to acid reflux, unusual heart rate)

However, my internal shaking and increased heart rate has temporarily stopped! There could be a number of reasons why this is:
1) I had been anxious about my heart for two weeks. I went to the Emergency Room and started crying. After crying and having confirmation from the ER that I wasn't having a heart attack, I felt calm and comfortable so my shaking was potentially because of a buildup of stress and lack of sleep.
2) I started taking Miralax and Prevacid on the 14th as my doctor prescribed. Perhaps they are just now kicking in.

While I am glad my heart tremors have stopped, I am afraid that this is just another stop on the way to some disease I need to identify before it's too late. I have had a myriad of symptoms over the years, most of which I believe stemmed from my gut; constipation is the one constant. I have also recently been having a variety of brain fog (trouble visualizing reasoning for instinctive activities, trouble reviewing my thoughts) and have always had very poor blood circulation, pains in breastbone/chest, strange & intense drowsiness after eating, inability to feel hunger except by way of fatigue, and post-constipation pain in the left side of my brain/left eye.

I will still look into getting a heart monitor! And I will most likely post about this in the Brain & Nervous System group as well. If it is not a GI disorder, I'm not sure how to move forward.

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I have also felt internal shaking and extreme fatigue after eating at times. I don’t have any diagnosis yet but deal with diarrhea, significant weight loss, loss of appetite, and nausea.

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Profile picture for blessedwildapplegirl @blessedwildapplegirl

I had sudden onset stomach inflammation, but no ulcer as far as I know, and it came along with tinnitus and also Gerd, which I had never had before, and then a few nights ago I felt that internal vibrating sensation that you were describing. I looked up the symptoms online and found that they could be from long Covid. I wasn’t aware that I ever had Covid, but in mid November, suddenly out of nowhere, I was sick for a couple weeks and couldn’t eat, and had terrible diarrhea. My stomach is still not right. I have no idea what’s going on. I Have read that Gerd can cause tinnitus. I would think esophagitis is the same thing, right? I’ve been thinking of going to a clinic and having a colonoscopy or something because I can’t figure out what’s wrong. It’s really seems to be getting better, but not fast enough. Plus, I’m exhausted all the time and having insomnia. I hope we can figure out what’s going on. Let me know if you get any info and I’ll try to do the same. I hear you and I feel your pain! It’s dreadful not to be able to eat. 😩💕

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Can u send me a message to stay in touch

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Profile picture for emmyk314 @emmyk314

I have also felt internal shaking and extreme fatigue after eating at times. I don’t have any diagnosis yet but deal with diarrhea, significant weight loss, loss of appetite, and nausea.

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Have you been able to find out what was causing your symptoms?

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Profile picture for tony248 @tony248

Can u send me a message to stay in touch

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Hi Tony. Are you still having the internal shaking? I haven’t had it as much and I think it might be my blood sugar. I’m still dealing with terrible stomach issues though and I went to a G.I. clinic and they want me to have a colonoscopy and an endoscopy And I was supposed to go have a CAT scan with angio a couple of days ago, but I was feeling so crummy I missed the appointment. I don’t want to do any of them, but I will. I need to eat! I hope you’re doing OK. Let me know.

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Profile picture for blessedwildapplegirl @blessedwildapplegirl

Hi Tony. Are you still having the internal shaking? I haven’t had it as much and I think it might be my blood sugar. I’m still dealing with terrible stomach issues though and I went to a G.I. clinic and they want me to have a colonoscopy and an endoscopy And I was supposed to go have a CAT scan with angio a couple of days ago, but I was feeling so crummy I missed the appointment. I don’t want to do any of them, but I will. I need to eat! I hope you’re doing OK. Let me know.

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I would go. I have to force myself to rebook the many appointments I cancel due to not feeling well. I didn’t go to the GI until I was bleeding dark and it was a very large polyp in my stomach that was benign but explained my bad stomachaches and it took a long time for the inflammation to go away.
I kept canceling my 3rd colonoscopy long after it was due and denying the GI’s advice until he said I was a few months away from Stage 1 cancer of the fastest growing most deadly form of colon cancer after they dissected the growth.
I ignored the warning sign in my eye until two doctors said I had experienced a TIA and was definitely going to have a major stroke as both carotids were 70% blocked.
I weigh 117 at 5’1 age 64.
I absolutely hate going into the drs because I usually hear something new. But I’ve learned if I put it off even a few months it’ll be life changing.
I encourage everyone to do preventative care. It’s like the old saying, “an ounce of prevention is worth a pound of cure”, and it’s also cheaper

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Profile picture for sungaltoo @sungaltoo

I would go. I have to force myself to rebook the many appointments I cancel due to not feeling well. I didn’t go to the GI until I was bleeding dark and it was a very large polyp in my stomach that was benign but explained my bad stomachaches and it took a long time for the inflammation to go away.
I kept canceling my 3rd colonoscopy long after it was due and denying the GI’s advice until he said I was a few months away from Stage 1 cancer of the fastest growing most deadly form of colon cancer after they dissected the growth.
I ignored the warning sign in my eye until two doctors said I had experienced a TIA and was definitely going to have a major stroke as both carotids were 70% blocked.
I weigh 117 at 5’1 age 64.
I absolutely hate going into the drs because I usually hear something new. But I’ve learned if I put it off even a few months it’ll be life changing.
I encourage everyone to do preventative care. It’s like the old saying, “an ounce of prevention is worth a pound of cure”, and it’s also cheaper

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Thank you for the advice! I’m sorry you had to go through all that, but I’m also glad that they caught things before they got worse. My friends also keep telling me I need to do this, even though I don’t want to. I have such a lack of trust in the medical system, but you’re right. I need to do it just in case there is something they can find and fix. Thank you again and take care.

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Peace to all,
I joined this group to share a little on my own health journey and in sharing I hope and pray that I may be a little light shining for those who are in darkness, for those who are in fear and suffer alone. The first time I noticed weakness was from getting back from a holiday. I suffered from bloating, weakness, constipation, swollen heavy ankles, migraines and I had to stop eating dairy, bread. I went on a strict diet of no sugar, just fresh vegetables, fish, meat. salad. I did a parasite cleanse and felt much better but I wasn’t topping up my vitamins enough for years. Bloating and the other health issues were causing malabsorption of iron and B12, B6, B1 which are for the nervous system.
About 23 years ago I ended really in terrible way, where I was so weak, I had tremors, vibrations, movements in my head, lightheaded, loud noise in my head like the whistling and chucking of a train. Very scary. I was in and out of hospital and all the blood test result were all good. Only a tiny low on iron. Hospital couldn’t find anything so I was sent home under investigation. My pharmacist did my blood pressure and said that I was anemic. And he told me to take iron and B complex and I improved. Not fully, but I was out an about. During the 5 months I was bed ridden I put all my trust in something Greater than myself. About 7 years ago I had a relapse not as bad as the first time. I started to research on vitamins and any way to get to the point I noticed the B complex vitamins and iron seem to make an improvement. I went to a private clinic where I had IV therapy and B12, B6,B1 injections. This has made a great improvement in my well being. Plus when testing for B12, it’s active B12 that needs to be checked. Not the non active B12. Malabsorption will stop absorption of vitamins.

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Profile picture for lovely1 @lovely1

Peace to all,
I joined this group to share a little on my own health journey and in sharing I hope and pray that I may be a little light shining for those who are in darkness, for those who are in fear and suffer alone. The first time I noticed weakness was from getting back from a holiday. I suffered from bloating, weakness, constipation, swollen heavy ankles, migraines and I had to stop eating dairy, bread. I went on a strict diet of no sugar, just fresh vegetables, fish, meat. salad. I did a parasite cleanse and felt much better but I wasn’t topping up my vitamins enough for years. Bloating and the other health issues were causing malabsorption of iron and B12, B6, B1 which are for the nervous system.
About 23 years ago I ended really in terrible way, where I was so weak, I had tremors, vibrations, movements in my head, lightheaded, loud noise in my head like the whistling and chucking of a train. Very scary. I was in and out of hospital and all the blood test result were all good. Only a tiny low on iron. Hospital couldn’t find anything so I was sent home under investigation. My pharmacist did my blood pressure and said that I was anemic. And he told me to take iron and B complex and I improved. Not fully, but I was out an about. During the 5 months I was bed ridden I put all my trust in something Greater than myself. About 7 years ago I had a relapse not as bad as the first time. I started to research on vitamins and any way to get to the point I noticed the B complex vitamins and iron seem to make an improvement. I went to a private clinic where I had IV therapy and B12, B6,B1 injections. This has made a great improvement in my well being. Plus when testing for B12, it’s active B12 that needs to be checked. Not the non active B12. Malabsorption will stop absorption of vitamins.

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GERD/Acid reflux stops absorption of vitamins. Carbs also can do this. Noticing the colour nails and gums and hair falling is good indicator of malabsorption.

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What I have found out recently also is that the Vagus nerve plays a great role in our well being and on this journey of researching the way to nourish the vagus nerve is having omega 3 and belly breathing. I am still on the journey of recovery, and learning new ways to healing.

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Profile picture for lovely1 @lovely1

GERD/Acid reflux stops absorption of vitamins. Carbs also can do this. Noticing the colour nails and gums and hair falling is good indicator of malabsorption.

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Thank you.

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