Pain Rehab Program decision

Posted by jefferie @jefferie, Feb 12, 2019

I have had chronic lower back pain due to scoliosis, bulging disc and degenerative disc disease for over 10 years. My doctor's answer has been hydrocodone. I exist. I get up and go to work for 8 hours but often find myself in too much pain to think. I try to limit my painkiller use to one every 4-8 hours. I am now breaking out in hives on my back which was automatically blamed on my painkiller use. I don't enjoy it. I don't get high. I survive. Has anyone had any experience with the Mayo Pain Rehab program? I would gladly give them a month of my life to live without drugs if they could be more specific on how exactly it works. I don't need a warden to lock down my meds or a judgemental nurse ( had one at Mayo) to look down on me because I do what I have to to keep going. If anyone has been to this program I would appreciate feedback.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I appreciate that @summertime4 has issues but that might work better in a separate blog. I am at the end of my 10 year rope with pain and want advice and experiences from those who have experienced the Mayo Pain Rehabilitation program.
Can anyone provide me with a sample day in the program? Are they teaching new innovative ways of dealing with pain? I don't want to trade opiates that I am taking at a prescribed level by my doctor for CBD. I want a way to continue my life. They speak of restoring function to life. I still function quite well. I just pay dearly for it.
Does the 2 day program give insight to the 3 week program? They told me with start/stop times it is actually a 4 week commitment.

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@dawn_giacabazi

@lioness
I tell you we tried some crazy stuff. Looking back I laugh out loud. To get personal for a minute, my breasts are size DDD and they tried to tape my breasts up and attached the tape At my shoulders which ripped off layers and layers and layers of skin I was bleeding. 🥴 Then we went to the brace. The weight of my breasts would pull the fracture open. All the constant movements caused costochondral chondritis and prevented the fractures from healing. Crazy stuff.

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@dawn_giacabazi Glad your over that hurtle I've heard that some women with big breast have a reduction done I don't think I would but they do get heavy especially I can see with surgery you try everything but that was funny

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I have been referred by my rheumatologist to go to Rochester's pediatric pain rehab program. I'm 17 and I have fibromyalgia from possibly my spinal fusion surgery for scoliosis! Has anyone had any success with it? i have lots of questions!

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@sophiaaa

I have been referred by my rheumatologist to go to Rochester's pediatric pain rehab program. I'm 17 and I have fibromyalgia from possibly my spinal fusion surgery for scoliosis! Has anyone had any success with it? i have lots of questions!

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Hello @sophiaaa, and welcome to Connect. You may notice I moved your discussion and combined it with one titled "Pain rehab program." I did this so you could meet some of the other members who have gone through the pain program or are considering going through the pain rehab program. There is an older discussion on Connect that also talks about the Pain Rehab program at Mayo Clinic that you may find worth your time reading through as well, https://connect.mayoclinic.org/discussion/pain-rehabilitation-21da8b/.

There are many discussions on Scoliosis as well:

- https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/
- https://connect.mayoclinic.org/discussion/chronic-back-pain-2c72ae/
- https://connect.mayoclinic.org/discussion/i-had-surgery-for-scoliosis-in-1973-which-included-harrington-rod-placement/
- https://connect.mayoclinic.org/discussion/scoliosis-and-sleep-number-beds/

There are also many members talking about spinal fusions as well:

- https://connect.mayoclinic.org/discussion/fusion-again/
- https://connect.mayoclinic.org/discussion/chronic-pain-and-spinal-fusion/

@sophiaaa, the pain program has been recommended to you, does this mean your other attempts at treatment have not gone well?

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