Irene,
Please have hope that you and your son may not travel this path. James began it on the Pine Ridge Reservation where his mother could get him care. His first surgeries were done experimentally and at the behest of the Children’s Hospital in St. Paul, Minnesota.
His ear maintenance was not the best because of where he received care but then nobody’s care to this day is on any reservation in the Rocky Mountain Region and South Dakota.
I can offer you hope when my husband had little and by a miracle, met the One who gave him that very thing when he was 9 years old on Easter Sunday.
I also can offer you my biggest weapon from our home in the wilds of Wyoming— prayer. I will be praying for you and your son.