Hi @angiee, welcome to Connect. Wow, 4 surgeries in 5 years. I bet you have seen the last of surgeries for some time. Can you tell me more about the titanium implant that you had done last week? How is the recovery going?

@angiee I just found you on this site as I was looking for something else. I am stunned by everything you have been through. When we adopted our son Yu Xia at age 6 from an orphanage in China he was deaf in one ear, had cleft lip and palate, and weighed only 25 pounds. He had many surgeries in Boston, one of which was for a rapidly growing cholesteatoma which would have killed him had they not discovered it when doing a mastoid surgery. His last surgery was at Tufts when he was in his early 20’s. Yu Xia is 30 now, and I worry about him constantly as he is pretty much non verbal so we don’t know how he feels. He lives on his own now as well. He refused his hearing aids and FM unit as a teen. He had a full ride to UCONN school of engineering but gave up somewhere along the line, and we were helpless to help him. God knows we tried! It is hard to argue with someone who doesn’t speak. We think he has late onset autism, but he was never diagnosed. Can you tell me if cholesteatoma grows back? I am guessing yes.?? Symptoms? The doctors in Boston had told us they got it all, and they were fantastic. Also, what is this titanium implant for? Thank you so much for wading through this, and thank you in advance for any info. God bless you real well! irene5