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Hypersensitivity pneumonitis interstitial lung disease (HSID)

Lung Health | Last Active: Dec 27, 2023 | Replies (13)
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@merpreb

Welcome @mec1944 to connect. I am so sorry that you have had to be on high doses of prednisone. I hate prednisone but it's the best there is for inflammation out there. We are not doctors so I can't recommend another medication but I can suggest that you ask your doctor if there are any others with less harsh side effects. I become a different person, mean and intolerant. Only your doctor should decide when you are well enough. "Hypersensitivity pneumonitis (HP) is an interstitial lung disease caused by repeated inhalation of certain fungal, bacterial, animal protein or reactive chemical particles, called antigens. ... Hypersensitivity pneumonitis is subdivided into two forms: acute and chronic. Symptoms differ for each form." google. If this disease has caused a lot of scar tissue than taking prednisone can lower the inflammation. Do you know what antigen caused your disease? Are you breathing ok?

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Replies to "Welcome @mec1944 to connect. I am so sorry that you have had to be on high..."
hefmate | @hefmate | Mar 18, 2019

I had it for a while now I just my lungs are hurting me more than before when I was told that I have this disease

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hellokris | @hellokris | Mar 10, 2023

I have just been diagnosed with fibrotic hypersensitivity pneumonitis. I am quite certain it is from the reactive chemicals in my husband's 3d printing lab in our house. I just had the bronchial lavage and HRCT which both strongly suggest this diagnosis. My Dr will be meeting with other specialists next week to review my case. Not an easy diagnosis

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vic83 | @vic83 | Dec 19, 2023

Hi Merry
Just came across this....you turn into a mean and intolerant person????? I started Prednisone 40mg six weeks ago (2wks 40mg, 2wks 30mg, 2wks 20mg and now 2 wks 10mg and then stop) for what is now described as radiation-induced pneumonitis. I became hyperactive and organized a ton of stuff...fortunately it put me in a good mood, and I couldn't stop talking. But it doesn't let you sleep. So, I will be glad to be off of it. Unfortunately, in my case it means they can't do immunotherapy.

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