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sue6408 (@sue6408)

C. difficile – Are your guts ever normal again?

Digestive Health | Last Active: Sep 15 9:35am | Replies (598)

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@nettecook

@patts I’m so sorry you are still sick. I remember the feeling of “this is never going to go away!” I was so frustrated of feeling like the walking plague. My doc didn’t keep testing me. He went by my symptoms. I had 3 rounds of Vanco. My insurance wouldn’t cover Dificud. I had a FMT in Feb of this year and just now feel like I’m getting in a normal rhythm to some extent. I also have Crohns so it’s complicated. I want to give you some hope when you feel like you keep getting slammed! This group understands.

Those who are suffering from gas and bloating post c-Diff….. I’m trying this… I’m taking 100 mg stool softener every night as well as a gas-x every morning and night. My gastro prescribed Bentyl to take for the cramps. 10-20 mgs up to 4 times a day. It seems to be helping. Gas x has never helped me but I decided I was going to see. I also take 500 mg of Magnesium twice daily. Obviously, I am not having diarrhea again… 🤪. The first night I took the stool softener I had an accident in bed, so I had to play with the dose for awhile. I too am 47. 🙄

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Replies to "@patts I’m so sorry you are still sick. I remember the feeling of “this is never..."

So far my docs suggest ion is helping also. Eating small meals every 2 hours.

Thanks, Nette. I’m hoping my doc will go by the symptom too as in havent been making numerous mad dashes to the bathroom multiple times a day. I’ll happily finish my vanco prescription and see where we go from there.

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