@losthope That sounds terrible and scary. My heart goes out to you. Have you seen a specialist in C. Diff? My general practitioner acknowledged to me she had only treated 4 other people with C. Diff and she made some mistakes. I ended up going to an Infectious Disease Specialist (who apparently is the one who really knows how the disease works) and then to a Gastroenterologist with C. Diff specialty -- as in he had expertise in how to treat the disease. These two specialists knew what they were talking about. And I am getting better. They explained what is wrong with my immune system and why if I get c. diff again they will do fecal transplant. Have you been to see specialists at hospitals that have a good reputation? teaching hospitals associated with universities are often best. Mayo of course would be good. If you live near NYC I could tell you the name of the two doctors I went to. sending you my best wishes, anna