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DiscussionC. difficile – Are your guts ever normal again?
Digestive Health | Last Active: Jul 15 5:56pm | Replies (646)Comment receiving replies
Replies to "Hi Ngorman25, so sorry younjad to battle the CDiff. I have had CDiff more times then..."
@suzannedee I am so sorry you have been so sick. After my first bout of CDiff my test came back negative but my doc was convinced it was a false reading so he treated me 3 more times before the transplant. I think false negatives are common. I had the FMT on Feb 28 and it took at least a month until I was convinced it was gone but I still am not “normal.” I don’t feel like I have been hit by a truck anymore, energy is slowly coming back, but my bowels are unpredictable. I think I do have IBS again(I have it and Crohn’s) but the horrid CDiff seems to be fading for now. The nurse told me when I called that it takes a good while to feel good. Here is what is so strange. I did not lose weight. I also don’t lose weight from 18-20 times of diarrhea a day with Crohn’s. So strange. Vanco can cause weight gain and prednisone can cause weight gain. I was usually on prednisone with Crohn’s flares so I guess that’s it. I did not have to be admitted for CDiff. You were really very sick. I’m so sorry no one took you seriously. I’m
Also scared to hear your first bout was in 1992 and you are STILL dealing with the risk of CDiff. Ugh Good luck with the FMT. It is not a big deal at all.
@suzannedee My heart goes out to you. I also tested negative between my 3rd and 4th bouts of Cdiff last year. I had to go almost a week before they would retest knowing that it was Cdiff. After reading up on everything I could find, I also found there was more than one test for Cdiff. It takes longer but is more accurate. I too did Flagyl, Vanco, then Vanco taper for 6 weeks and finally the expensive Dificid (fidaximicin). I had decided FMT would be the next recourse for me. Thankfully, the Dificid worked. I'm still not "normal" and realize that it could take a year or longer. I was fortunate that I made it through winter without sinus infections and needing an antibiotic. Clindamycin for one was what started this dreadful Cdiff for me. Stay positive and keep us updated after your FMT.
@suzannedee Hi, suzannedee, today marks 4 weeks post fmt. I wish I had words of encouragement for you, but I don't! Up until two days ago, I felt really good. But on Wednesday night I started having some mucus discharge. I am still having a lot of mucus and know I have to contact my gastro doctor. I am terrified! I haven't even mentioned it to my family yet. I am so done.