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Caregivers | Last Active: Feb 23, 2020 | Replies (62)
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Replies to "Yes. They aren’t sure what is causing his diarrhea either. Had multiple labs and tests. He..."
@susan2018
We are rowing a similar boat. To make a long story short my husband had a cystproctatectomy early Oct. Was discharged with an undiagnosed ileus and pelvic abcess three weeks later. He required admission to ICU 8 days post op, when he had 7 litres of aspirate drained immediately and 1 litre every 4 hrs for 24 - 36 hrs until it began to reduce. He had a NDE experience his first night in ICU. All this was in a private hospital where I had stayed mostly 24/7 and my concerns were generally ignored.
A little over 24 hrs after discharge I was forced to call the ambulance and had him transferred to our public hospital who could never understand how he was discharged. He underwent emergency surgery for a pelvic abscess and peritonitis, admission to ICU and another 5 week stay. He had a flexible colonoscopy and later a neostigmine infusion to attempt to 'kick start' his bowel with little effect honestly. It was 7 weeks until he passed flatus.
He was discharged 30 Nov and it continues to be a struggle. His quaillty of life has been effected majorly. He has had to withdraw from 2 state NFP committees he has been on for years, one as chairman as he is unable to perform his judicial duties. It is heartbreaking given he spent 6 months 'training' prior to surgery to ensure he was in the best possible shape. The staff at the public ICU say it is probably the reason he didn't die.
It is heartbreaking to say the least and others think because he is home he is OK which is so far from the truth.
Hope your husband is doing well and your weekend is peaceful. Take care. X